Hi and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here.
I am Mike Thehighlander and I have lived over 20 years with Cutaneous T Cell Lymphoma (Skin Lymphoma). We have a dedicated forum covering the various T-Cell Lymphomas. Follow this link T-Cell Lymphoma and join the group.
To do this hit the ‘Join the Group’ tab just under the main group name. At this point go to the right on the group home page and select how you want to receive email notifications when someone answers your posts. If in the future you don’t want to receive notifications just switch off the email notifications tab.
The best way to get support is to go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and Introduce yourself to the group - you could just copy an paste what you have in this first post but think about specific questions as you will get specific answers.
I will look out for you.
Yes, this can often happen. I lost about 59lbs over my treatment long journey and have put back on about half of this post treatment.
Please come over and post on the T-cell lymphomas forum and tell us a little of what is going on as you can pick up more people hi can help you out.
