Hi all,
New to any online Community site, so hopefully I won’t make mistakes
Reasons for joining this community-
Last September I went to the A&E department with mild chest pain (My GPs won’t see you if it involves the chest) Had all the usual tests and was nearly sent home by the Doctor as he thought I was fine. I wasn’t convinced with his diagnosis. So he sent me to another depatment. Here I had a chest X-ray to find out I hand fluid on the lungs. A week later I had a ct-scan and the next day was given my results. I went from supposedly to being fine to a long list of lumps and bumps.
I had the fluid drained from my chest, and test results showed not cancer cells, the Dr still wanted me to have a Thoracoscopy, which was then booked for late October. Waited all day to have this done and was given morphine for the first time. And guess what me and morphine don’t like each other, so it was cancelled. I was then referred to a thoracic surgeon who seems convinced that is it empyema, but not 100% sure, and wants to delay surgery, this was December.
Whilst this was going on and was I also referred to Urology for a kidney lesion. This turned out to be a Bosiank III cyst 50/50 chance of cancer. They said they would keep monitoring Bosinak cyst. Saw them again in January and was told the same, "we will monitor." Not completely happy with this, as if you look on the internet, grade III Bosniak cysts are normally removed.
So five months have gone by and I am having a CT scan on the 10th of June. The nerves have started to kick in. My next appointment to see the thoracic surgeon is the 9th July and the Urology on the 1st August. This is going to feel like a long wait
Mum2000 x
Hi and welcome to the online community
As I had not heard of a Bosinak Cyst before I looked for information on this site and found quite a few people in the kidney cancer group who have this. This might be a good group for you to join as you can ask questions and share experiences as well as get support on how to cope while waiting for tests and scans.
To join just click on the link I've created and then choose 'join this group' on the page that opens. To ask a question or introduce yourself select 'start a discussion' and to respond to existing posts click on 'reply'.
When you feel up to it, it would be really useful if could pop something about your journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
