Supporting partner secondary BC with bone Mets

hi Chris

welcome to the online community, sorry you've had to come and find us

just under 5 years is a kick in the teeth for a start, we all have an ambition to get to that milestone, even if it's actually no guarantee that we can put this damned experience behind us. 

The breast group is busier than the other groups, so I'd have a look around there.

I admire people who try alternative therapies but only if it's alongside and complimentary to the usual treatments. 

Carolyn

xx

Thanks. ‘Therapies’ do polarise people. But I think to avoid conventional treatment is a folly.

‘How To Starve cancer’ is not quite as woo as it sounds. It covers many prescription drugs and manageable lifestyle / diet changes.

It’s not specific to BC reading it was empowering for my wife. Feeling there is something YOU can do as opposed to having things done to you kind of puts you back in control.

I will probably edit and repost this in the BC forum. Thanks 

hi Chris

there's a lot to be said for any actions that boost our mood, our confidence or our positivity 

feeling that you are a little bit more in control is a bonus, if for that reason alone it's had a good effect then crack on

I struggled with shampoo after I finished chemo and had to switch but it was pretty obvious, my scalp was burning, hence I acted. 

Some things aren't quite as clear cut.

Carolyn

xx

Hi

I am so sorry to hear about your wife. And very glad your kids aren’t called 6 and 9. 

I think talking to children is one of the hardest things and it’s worth taking some time to get this right. I hope this information from the main site will help

https://www.macmillan.org.uk/information-and-support/coping/talking-about-cancer/talking-to-children

All the best 

Thanks Daloni.

we did the breast cancer books with my eldest last time around. I feel there is a gap in helping young (ish) families deal with the weight of this situation.

I mean there must be some sort of family counselling available. I think I get more benefit from speaking to a psychologist specialising children than anything else.

Hi

Yes I know what you mean. I have teenagers and I am a single mum. The people who help me most are the nurses at the hospice. I got in touch with them early - when the cancer came back I was told it was incurable. It felt like a big step but the hospice is all about helping us to live as normally as we can.

Now I feel I should read you profile. It’s good to know there is support somewhere. I kind of don’t want to need it but I guess we will find it when the time is right.