Hello,I am a newby.I hope I dont do this wrong.I was diagnosed with Breast Cancer in Sept.2016,at the same time my step-daughter was just finishing Radio therapy for Breast Cancer.She had a Lumpectomy I had a mastectomy.I came through the operation,as did my step-daughter,she has to take Tamoxofen,I have nothing.6 months after the operation,I started with dreadful dizziness,I was doing the 10,000 steps,I found bright lights,patterns,motion made me feel I'll.Also pain in my neck shoulders,hips,legs,pins and needles.Basically I have become hypersensitive to everything.My step-daughter,had the same her doctor put her on beta blockers,and over a year later diagnosed Fibromyalgia.I have undergone oceans of tests,and nothing no one can tell me what this dizziness is,I have been in hospital twice with suspected heart attacks,has any body in the community had anything like this.
Thank you. Cleo
Hi Cleo and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here and so sorry to hear the problems you are having.
My cancer journey was rather different but if you follow this link to our Breast cancer Forum you will be able to connect with people who understand the journey you have been on and may have experiences that can help.
Follow the link and join the group. Hit the 'Start a Discussion' tab and introduce yourself to the group - you could just copy an paste what you put in this first post.
Remember to go to the right on the group home page and select how you want to receive email notifications when someone answers your posts.
During my treatments I had to be rushed to ICU a few times with a suspected heart attack. But it was diagnosed as A Fib. This was over three years now but even in January this year I was in hospital for a week with yet another infection and the AFib started again.
You may also find our various Macmillan Support Line Services on 0808 808 00 00 to be very helpful even if all you want to do is talk with friendly person that can help in lots of ways.
I see that you have found our ‘Ask an Expert’ section so let’s see if they can help you out.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.
If you haven't yet completed your profile when you have a minute could you pop something about your journey so far into it. This really helps others when answering. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine profile by clicking on my username.
All the best.
