Struggling to get diagnosis

FormerMember
FormerMember
  • 1 reply
  • 30 subscribers
  • 610 views

Hi,

I am new to the site and I am just looking for any advice or personal experience.

I have suspected Paget’s disease which may or may not indicate cancer. This was first suspected by a junior member at my GP however, senior members at the practice state that I am too young to have anything of the sort. 

This has been a persistent problem for me for over a year and I am struggling to get any kind of referral despite having an extensive family history of breast cancer. I am in a great deal of pain which affects me daily.

I am wondering if anybody has any experience of younger girls having this disease or if it is even worth continuing to seek a specialist opinion?

apologies in advance if this is not suitable for this forum.

  • Hi  and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here.

    This is such a hard time for you and the body does make this living thing very hard at times. 

    I see you have posted on our Breast Cancer Forum so let’s look for folks to get back to you.

    It will take a few days to get an answer from our nurse team but they will get back to you,

    You may also find our various Macmillan Support Line Services on 0808 808 00 00 to be very helpful even if all you want to do is talk with friendly person that can help in lots of ways.

    I do hope that you can get answers sooner than later.

    ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge