Hi all, not sure where to start really. My mom has severe copd which restricts her from walking due to being out of breath, she has a lot of chest infections. When she ended up in hospital in February due to yet another infection some think showed up on a chest xray so they repeated it after 6 weeks and then requested a ct scan of the area as what ever it was still appeared. The consultant is 95% certain it is cancer but due to the copd they cant do a biopsy. They requested a pet scan but when mom attended this she got very chlosterphobic and it could not be performed. I'm unsure what other tests they could now do to get results. They wanted to see if there was any other cancer in my moms body and this would have showed on a pet scan. Anyone else been in a similar situation? I have to call to speak with consultant on tuesday. This waiting is horrible x
Hi and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here and so sorry to hear that your mom is having a hard time.
I am no expert and can only go by my own cancer journey and as part of my various tests I did have to have a CT guided Lung Biopsy and it was not a great experience but it did confirm that I had Asbestosis - but nothing that could not be handled.
I have lived for 20 years with a rare type of Lymphoma and no blood test could confirm this it was only through biopsy....... so her teams hands are tied to a certain degree and yes a PET scan may well have showed more details but would most likely not give all the information
We do have our ‘Ask an Expert’ section and you could post a question to our Nurse team but please allow a few days to get an reply.
We also have these forums where you can connect with others supporting family and friends through their cancer journey: Carers Forum and Friends and Family Forum
Follow the link and join the group. Hit the 'Start a Discussion' tab and introduce yourself to the group - you could just copy an paste what you put in this first post. Remember to go to the right on the group home page and select how you want to receive email notifications when someone answers your posts.
You may also find our various Macmillan Support Line Services on 0808 808 00 00 to be very helpful even if all you want to do is talk with friendly person that can help in lots of ways.
Talking to people face to face can help a lot so check to see if you have any Local Macmillan Support Groups in your area or a Maggie’s Centre as these folks are amazing.
If you haven't yet completed your profile when you have a minute could you pop something about your journey so far into it. This really helps others when answering. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine profile by clicking on my username.
I may not have been a lot of help but follow up the links and post a few questions and I am we are aways around to help out.
Great that it’s a step in the right direction for you Leanne, wishing you and your mum all the best ((hugs))
