My husband has kidney cancer which sadly has spread he has been given Cabozantinib which has proved highly toxic unable to eat and exhausted all the time they reduced his medication from 60 to 50 two weeks ago but nothing g has changed he is 66 and up until the diagnoses in September we had an ideal life, everything has changed and he isn’t up to going out or even eating out, has anyone else had this medication ?
Hi and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here and so sorry to hear that your husband has been diagnosed with Kidney Cancer.
On my 20 years journey with cancer I found the best way to understand and plan to get through the rollercoaster was to find out as much information as possible.
With clear information you then can navigate the various challenges and control the whirlwind between the ears that a cancer diagnosis brings. So talking with people who are on the same journey will help a lot.
My cancer journey was rather different but i see you have already joined The Kidney Cancer Forum. This is the best place where you will be able to connect with people who understand the journey your husband is on. You can ask the folks questions about treatments, what to expect and how to help him during this time.
Just go to the group. Hit the 'Start a Discussion' tab and introduce yourself to the group - you could just copy an paste what you put in this first post.
Remember to go to the right on the group home page and select how you want to receive email notifications when someone answers your posts.
I see that you have also found our Carers Forum and our Friends and Family Forum as these great forums where you can connect with others supporting family and friends through their cancer journey.
You may also find our various Macmillan Support Line Services on 0808 808 00 00 to be very helpful even if all you want to do is talk with friendly person that can help in lots of ways.
We also have our ‘Ask an Expert’ section but please allow a few days to get an reply.
When you have time it would be helpful if you could put some information about yourself and the journey that brought you to the Community into your profile as it really does help the Community members to help you and get to know you.
Click on your username and that will take you to your homepage. Look for ‘Edit my Profile’ click on it and start to tell us as much or as little about yourself as you want then click on save before closing the page. Hit Thehighlanderand see my profile but it is rather long as my journey has been very long.
All the best.
