Glioblastoma

FormerMember
FormerMember
  • 2 replies
  • 30 subscribers
  • 715 views

Hello

My wife has just had a partial resection of a Grade 4 Glioblastoma Multiform, and has had unfortunate post-operative complications.

Can someone guide me to any specific forums on the site that would be relevant for my questions etc (if any)?

thanks

  • Hi  and warm welcome to the Online Community, although I am so sorry to see the circumstance that brought you here and so sorry to hear that your wife has been diagnosed with Grade 4 Glioblastoma Multiform

    On my 20 years journey with cancer I found the best way to understand and plan to get through was to find out as much information as possible. With clear information you then can navigate the various challenges and control the whirlwind between the ears that a cancer diagnosis brings. So talking with people who are on the same journey will help a lot.

    My cancer journey was rather different but if you follow this link to our Glioblastoma Multiform Forum you will be able to connect with people who understand the journey your wife is on so you can ask the folks questions about treatments, what to expect and how to help her at this time.

    Just join the group and hit the 'Start a Discussion' tab and introduce yourself to the group and remember to go to the right on the group home page and select how you want to receive email notifications when someone answers your posts.

    We also have these forums where you can connect with others supporting family and friends through their cancer journey: Carers Forum and Friends and Family Forum

    You may also find our various Macmillan Support Line Services on 0808 808 00 00 to be very helpful even if all you want to do is talk with friendly person that can help in lots of ways.

    We also have our ‘Ask an Expert’section but please allow a few days to get an reply.

    When you have time it would be helpful if you could put some information about yourself and the journey that brought you to the Community into your profile as it really does help the Community members to help you and get to know you.

    Click on your username and that will take you to your homepage. Look for ‘Edit my Profile’ click on it and start to tell us as much or as little about yourself as you want then click on save before closing the page. Hit  and see my profile but it is rather long as my journey has been very long.

    All the best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Many thanks - very useful