Hey to whoever is reading!
This is my first time writing a post about being a carer, so I’m unsure what’s going to happen but here I am!
I’m 19 years old, and I live with just my mum who’s been diagnosed with breast cancer when I was 15. Unfortunately it’s spread to her bones, lungs and liver making her unable to walk & bed bound!
Since I was 15, I’ve been caring for her non-stop and 4 years later I’m so exhausted. I don’t feel like I have any time for myself (& I can’t really keep asking my friends to help out!) She has carers come in for breakfast, lunch and dinner but I still end up cleaning her, cooking meals - basically doing everything!!
Recently, she’s become a lot more weaker & I’ll, meaning I’ve been having to do so much more making me feel like I can’t cope! I’ve never gone to a support group or spoken about how I’m feeling to anyone properly.
I feel bad for feeling this way! I’m worried about myself & I’m not sure if I’m able to look after her on my own anymore! She doesn’t want to go to a care place/hospital which leave me to look after her when she definitely needs 24/7 care? I don’t know what to do!
Im sorry it’s such a negative post!
Amy
Hi Amy.
I am so sorry that you've had to join this forum but having said that I am glad you've reached out to us.
At 19 you should not have so much put on your shoulders and looking after a sick parent is never easy and can take so much out of you and I am not surprised you are exhausted.
I think that tomorrow you should contact your local councils Adult support service and ask for a carers assessment. If you have a look at this Carers Assessment it tells everything you need to know but rest assured that they have your interests at heart and will not do anything against your wishes.., but please do make a call to your local council offices tomorrow.
The other think you should be doing is contacting your GP to put him in the picture and tell him although you don't mind looking after mum it is having an effects of your own health.
I would also like to invite you to join our Carers only forum group where I hope we can give you help, support and advice.
I really can't stress enough that you need time for you and to go out with friends and have fun.
Please never apologise to us for being negative this is a very safe place for you to visit and let off steam, rant and rave or just come on for a chat at anytime you do feel low, and well done for taking the first step to improve the quality of life for mum and yourself.
Please keep in touch with us so that we can be of support to you at any time you need us.
I look forward to welcoming you into the carers group and I'm sure the other friendly members will be will with me in welcoming you.
Please make the call and let me know how you get on.
Ian
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Ian
Hi Amy
You sound like an amazing, strong and loving daughter, you really do. I can't imagine how hard it's been being your Mum's sole carer from the age of only 15, for 4 long years. It does definitely sound to me like it's time to ask for much more help for your Mum and yourself.
I'm just so impressed with you. You sound so mature and sensible and so very loving of your Mum.
I hope you get the help you need from the various council support, GP and Macmillan services. And I hope that you manage to get some time for yourself and for being a young adult with her own life and needs. Doing that does NOT involve 'letting your Mum down' in any way whatsoever, and I hope you know that.
Sending my very best wishes for yourself and your Mum. And a hug, if you don't mind that.
Ailsa X
Hi Amy
Just wondering how you are today and to give you somemore information where you might get help and support
The first one is called Macmillan support in your area and if you enter your postcode it will bring up a list of support that is available in your area
The second one is the Macmillan telephone support line where a friendly team of advisers will take your call and listen to you whilst you talk to them about anything, the team are there to give you support and advice, on the same number I am about to give you, you can speak to a team of friendly specialists who can give you advice on anything to do with financial, welfare rights and a lot more but that's not all you can speak to one of our specialist nurses on anything that concerns you about your mum or even yourself. A lot of information, help and support can be obtained by phoning one freephone number and the number to call is
0808 808 0000
Really, the friendly support team are waiting to take you call and help you.
I hope you've had a chance to look at the carers assessment I do think you really need to do this and get some help for yourself so you have the energy to continue to care for your mum.
Amy , first please take the first steps today you and your mum won't regret it but you will find some benefit from doing so.
Please let me know how you are getting on by keeping in touch.
Hear from you soon.
Ian
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