Hello Everyone,
This is my first post. So, back in December I missed a period, and then had one in January that lasted for about 8 days, then stopped for 3, and started up again, and wouldn't stop for 2.5 months. I thought it was all part of peri-menopause. I went to the dr. and they ordered a transvaginal ultrasound. My endometrial lining was 21mm. The next day I was called in for a biopsy. I waited 3 weeks for the results. During that time they prescribed BC pills a combination of estrogen, and progesterone to stop the bleeding. They made me very sick, and caused my normal blood pressure to hit stage 2 hypertension. When my results came back the pulled me off the estrogen, and I am now on just progesterone to stop the bleeding. I was told when I got my results that there could still be cancer cells above, and around the biopsy site, and I am waiting to get into a cancer clinic in May. The recommendation is total hysterectomy.
I lost both my parents to cancer. My Mom was diagnosed with breast cancer at 45, and it went to her liver. She passed away at 48. She also had a total hysterectomy at 38, but I don't know if it was because of excessive bleeding, or if the saw abnormal cells. My dad was diagnosed with cancer throughout his body on a Friday, and died the following Tuesday. He was 51. We have a huge history of cancer in our family.
Some days feel like things are pretty normal, and then I have moments when so many questions, and fear are running through my mind. I have noticed some abdominal pain mostly on my right side, and a lot of upset stomach. My ultrasound was unable to see my right ovary, and I find I get tired very quickly. I was also diagnosed with endometriosis based on symptoms years ago, so I am not sure if that is part of the problem.
I just wish I new for sure what is in there for peace of mind. I would like to know how many people were diagnosed with this, and at hysterectomy found out it was actually cancer? How long did you have to wait from the time of your biopsy until hysterectomy? What do you do to cope when your mind is going all over the place? What type of hysterectomy were you offered with this?
I have started writing down questions that I want to ask at my appointment. I also want to make it clear that I want to be told everything up front. My Mom was not given that option. She had 17 malignant tumors removed with her first breast surgery, and they didn't get it all. They didn't tell her until it went to her liver. I don't ever want someone doing that to me. I want to be the one to make all the decisions regarding how to proceed.
Anyways, thank you for listening.
Hi and welcome to the Online Community, although I am so sorry to see the circumstance that brought you here and so sorry to hear that you have been diagnosed with Womb Cancer and the cancer issues your family have been through and are going through.
I am Mike Thehighlander and I volunteer on the Community and I will do my best to get you to the best place for you to find the support and the help you need. On my long journey I found the best way to navigate the various challenges that a cancer diagnosis brings was by talking with people who are on the same journey.
My cancer journey was rather different (obviously) but I see that you have already joined the Womb Cancer Forum - this is the place where you will be able to connect with people who understand the journey you are on. Just copy and paste your post into the group.
Just go to the group and hit the 'Start a Discussion' tab and introduce yourself to the group and remember to go to the right on the group home page and select how you want to receive email notifications when someone answers your posts.
You may also find our various Macmillan Support Line Services on 0808 808 00 00 to be helpful as you can talk to a friendly person that can help in lots of ways.
We also have our ‘Ask an Expert’ section but please allow a few days to get an reply.
When you have time it would be helpful if you could put some information about yourself and the journey that brought you to the Community into your profile as it really does help the Community members to help you and get to know you.
Click on your username and that will take you to your homepage. Look for ‘Edit my Profile’ click on it and start to tell us as much or as little about yourself as you want then click on save before closing the page.
All the best.
All the very very best to you Jade
