Hi my mum is on Cape 2 weeks on and a week off they have not been able to give it to her for the last 5 weeks as she has been unwell. She has been having constant pain in the scar area from her open gallbladder removal in August does anyone know if Cape can be causing this pain? Could the pain be neuropathy from taking Cape? Is it normal to have side effects whilst on a break after not taking it for 5 weeks? She only has 2 more weeks on and then she has finished her 6 sessions of 2 weeks on. She has only been having bad side effects as in fatigue sickness dry mouth indigestion and constipation from it since they stopped it 5 weeks ago is this normal as she had hardly any side effects until 5 weeks ago when they stopped it? Has anyone else had pain where they had an operation after taking Cape? She is now in slow release morphine for this supposed scar tissue pain and fast acting morphine that i feel knocks her out and if shes awake shes not completely with it. Does Cape cause muscle weakness in legs? Dizziness? Any answers would be a great help as I dont know what to expect and I am her only full time carer and it's scary not knowing what to expect and how to deal with it. Thank you in advance. We have an appointment Monday with velindre I have a list of questions I will ask them also.
Hi Alex
I've just responded to your post in the Bowel (colon and rectal) cancer forum in which I've suggested that you might like to repost into the Ask a Nurse page for one of the specialist nurses to give you some answers. I'm also sure that some of the members will give you some help and advice as well.
As you are your mum's only full time carer I would like to invite you to join the Carers only forum group and introduce yourself to the friendly members over there. This is a very safe group to join as it's only for carers.
A few other groups that you might find beneficial to join are
Bowel (colon and rectal) cancer forum group
and
Family and friends forum group
All the members of the groups are very friendly and extremely supportive towards each other and will welcome you and give you help and advice when you need it.
Ian
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