Worrying my targeted treatment not working

FormerMember
FormerMember
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Hi, new here despite living with Stage 4 RCC . I was given 6-18 mnths to live nearly 5 years ago now. 

Luckily I have a great hospital and my treatment, pazopanib has been working well for 4 years... until now .. I think. 

One of the main side effects is whitening of hair and I’ve noticed recently that some hair has grown back with pigment !!  Understandably my mind is now in over drive and I’m worried that my next scan ( next week) will be dreadful . Most of my scans have show a decrease in nodule size or have been stable . 

Any advice or support would be great. I do have a supportive husband and family but once these thoughts are in your head ...

Thsnk you in advance 

  • Hello , I was just browsing through the site and thought I’d just pop in to say hello and congratulate you on finding your way around the site. I see you have already joined the kidney cancer group and reposted in there, although I forgot to check if you’d had a reply yet, but if not I’m sure it won’t be long before someone with the right experience comes along. 

    It’s amazing that your targeted therapy has been working well for 4 years, I have a different type of cancer metastatic melanoma, the targeted therapy that I started in 2015 only worked for 9 months before I had to change treatment, I know what that worry of having a bad, or not as good as you’d like, scan feels like. Your words of “once those thoughts are in your head”, I totally get that, I also feel that sometimes you have to accept that those low thoughts are normal and that you can’t be cheerful all the time. That’s the first stage of just acknowledging those thoughts and moving on. Actually my moving on is either to write down questions in case it is bad news but more often than not for me it’s just creating something else to focus on before the scan and before the results. I’ve found indoor crazy golf with a few friends has been good for me, I don’t want it to become too much of a habit though or I might start to associate it with bad news. I have a scan coming up 24/4 so if you have another idea of what you’ve done in the last 5 years I’m all ears for that. 

    I hope your scan isn’t as bad as you fear, or that they can give you so good news about what the next treatment plan is if they have to give you not so good news. 

    Best wishes

    Take care KT