Having 2 types of cancer

FormerMember
FormerMember
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Hi there.

Having read some concerns, I just want to add just how important it is to always have someone to travel with and go into the consultations.

Last Nov,  I went to my dentist who told me to see my gp soon. I had a lump on the back of my neck and a small raised area by my ear. Both lymph nodes, he said. Within 4 days I was at my first ENT consultation, then scan and facial biopsy few days later. Christmas eve I was diagnosed with follicular  non hodgkin's lymphoma. In shock, that came and went, panick attacks I am told? Never felt so alone. 

More waiting as bank holidays, then CT scan, pet scan, octreotide scan. Having shown up problems with my thyroid, another scan and biopsy revealed papilliary cancer as well. Also, chance I had carcinoma  syndrome as well.

I found myself feeling very thankful I only had 2, not 3 types of cancer !!! By now the panicks were long gone , only to be replaced by a sort of unrealness( is that a word!)

I have had some amazing nursing staff and compassionate consultants (5 at one point as I also have rheumatoid arthritis and now cannot take the low dose chemo meds)

But I have also come across 2 who literally were so desensitised and removed from any compassion etc, that I complained and challenged them and chosen a different surgeon. " how would you like a bone  marrow biopsy ."....and ,no, one can't keep ones leg still, as it's a reflex action!!..worst biopsy ever. That's 3 in all.

So, .....to take someone with you is a must. Your brain can go numb, your emotions come to the surface and you forget what is said.and want to cry all the way home.

I found myself so busy asking questions, that I failed to hear the word " cure"...yes, cure. It wasn't til the next morning, I rejoiced in that little word. Targeted radiotherapy here we come....but first the thyroid has to be removed and healed. Just hoping the tumours don't get any biggerScream

So, I feel positive, but also aware of the worst outcome of any surgery and Infection....so theres more to think about. Being on my own for a year, (husband in a nursing home, and died 2 months ago).

Wills, trust funds and appointing trustees  to add to the stress!! Least I forget, I run a hobby smallholding with various poultry, with thinking who on earth can help me. ? Worst time of year for geese. Mating season !!  They can even try to have a go at me, so this is challenging!! 

But,its all a very good distraction !! 

And....there is hope, and I am so very glad and grateful. And spring is here, with summer just round the corner. What better time of year to be treated?. Champagne glassBlushxx

  • FormerMember
    FormerMember

    Hi

    I am kind of stunned after reading your story- but in a good way. You have been through so much and yet you come across as positive, warm and funny. What’s your magic trick? 

    You are quite right about taking someone with you to important appointments. 

    Good luck with your various treatments. I’ve had the targeted radiotherapy and it was by far the easiest of the various things my doctors have tried over the years. It takes time to work though. It was a good three months before it was clear if had achieved anything. 

    Xx

  • Good morning and a second welcome to the Online Community. I must agree with my friend  that you have been through so much but you do sound so positive and full of hope, but so sorry to hear about your husband.

    Yes, taking another set of ears with you to appointments is a must as the person getting the diagnosis will only pick up 10-20% of what is said.

    The Online Community has various places to get support and information. I was diagnosed with a rare type of T-Cell Non Hodgkins Lymphoma 20 years ago so I hang around out various Lymphoma Forms and we do have a dedicated forums covering Follicular Lymphoma.

    There are also other forums that can be found by looking in the ‘Groups’ tan near the top and have a search at what we have. We also have our ‘Ask an Expert’ section, a great place to post some questions to some subject Specialists.

    If somewhere catches your eye just join the group and hit the 'Start a Discussion' tab and introduce yourself to the group and remember to go to the right on the group home page and select how you want to receive email notifications when someone answers your posts.

    It is always useful if you could put some information in your profile as this will help others when replying to you.

    Just click on your username and then select 'Edit Profile' under the Profile Settings. If you're not sure what sort of thing to put just click on my username,  to read my profile but as my journey was rather long.

    You may also find our various Macmillan Support Line Services on 0808 808 00 00 to be helpful as you can talk to a friendly person that can help in lots of ways.

    We are always around to help as best as we can.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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