Hello everyone. I'm Aneta. I'm currently awaiting my first appointment with a hematologist.
I have been through bowel cancer screening and breast cancer screaning since February.
I've had swallen lymph nodes and abdominal & back pain for 8 weeks now. Apart from that I have some classical lymphoma symptoms like night sweats and weight loss. My GP has done FBC, CRP and ESR and because they are all normal he didn't want to go the lymphoma route. It was only when I broke down in tears from stress and pain he agreed to have me referred. Lymphoma was suggested to me at the breast clinic, not by Dr Google :)
So here I am. Waiting for another referral. Looking after two very little children. Scared that I'm ill and won't be there for them all the time if I need treatment. I find it so hard to carry on with normal life. I just can't shake the feeling that I have lymphoma as I can't rationally explain all the symptoms and pain I'm experiencing.
How did you guys manage with the wait? It's been 8 weeks already and I'm looking at another few before I know anything for sure.
Thanks for reading :)
Good morning Aneta. when I was referring to turning the stress levels down I know it is much easier said than done but from my long journey it is real thing......... but keep pushing the doors to get your CT taken forward.
Also try to keep a record of all your issues with dates, duration and any triggers or what you were doing when you experienced the issue, yes this may focus your mind on what is going on but it will focus it in a productive way.
((hugs)) x
Good afternoon , good that your appointment has been brought forward as you will now get your plan and the noise between the ears will calm down.
Make sure you have a good list of questions so that you leave that appointment wishing “I should have asked....?”
Not a great situation to be in when you are dealing with the stress of diagnosis.
Words like that is actually wrong in so many ways and before you throw in the towel it may be worth a call to our Macmillan Support Line Services on 0808 808 00 00 as they can be very helpful even if all you want to do is talk with friendly person.
Well done Aneta A.B. sometimes you just have to jump the system but let’s look for this to bring back encouraging news X
, after thinking about your situation more I say phone our Employment Law Team and get an appointment with your GP and talk through you being signed off from work long term - you do have a lot of rights on your side,
