Newly diagnosed - looking for tips and resources

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Hello. I had breast lumpectomy and lymph node clearance over 6 months ago and have recently been diagnosed with lymphoedema in breast and upper arm. I’m waiting for a referral to lymphoedema clinic to come through and in the meantime doing everything I can to control it. So I’m wondering if anyone has tips / resources / helpful videos you can refer me to? I’m healthy, not overweight, exercise regularly, including weights. I’m particularly interested in information for people with lymph nodes clearance and build up of lymph below scar. I’ve done some manual drainage, but can’t find a video for the arm that has helped yet. Thanks for any help you can give.

  • Hi  I am sorry you are suffering from lymphoedema. I only had my sentinel nodes removed and haven’t had this experience. I am one of the community champions on the breast cancer forum and wondered if you would get more responses if you posted your question there, as it’s a busier forum,

     You can access it through this link. Breast cancer forum 

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission