Carcinosarcoma

  • 2 replies
  • 19 subscribers
  • 46 views

Morning all

Well after having a full hysterectomy in April 

Then been told that my endometrial cancer was carcinosarcoma stage 3 then in 8 werks stage 4 , nodules on the lungs and mass in the virgina, I just feel well thats it get  on with it, second chemo on the 7th July still trying to bounce back but its been hard, no energy, aches and pains, and now another UTI

I also have a discharge which as been continuous from the chemo, it was blood before the chemo, getting up in the night 2 and 3 times to change tena pants, I am not really sure where the discharge is coming from anymore

Oncolgy doctor says its fine, I am on two chemos and immunotherapy together 

No radiotherapy, its my 3rd chemo on the 28th of july not looking forward to it one bit, iam really down this whole thing as taken over my life, dont go anywhere because I dont feel well, and i have to take pads and tena ladies because I have to change myself also I am worried people can smell my dischargeSo going from a 63 Yr old in Dec 2025 working, enjoying holidays, to a unhappy pissed off old lady who is a prisoner to cancer, thought after the hysterectomy cancer was gone from my uterus, a few treatments then back to normal, 

Well see what happens when the treatment finishes Thinking 

  • Hi Mogsmum, I really feel  for you. Yes big C really does change our lives. I also had full histrectomy in 2018, different cancer bowel but Linch syndrome as well so big operation,  told all clear. year later it came back all over the place. So I get you Smirk ,  4 -1/2 yearz of treatment  and now cancer free. So stick with your treatment,  HOPE ìs something we all have . Be kind to your self,  I use the proper inco pants as my blader has a mind of its own and Femfresh or any of the new sprays for down there. Scream Scream rant and rave,   itz hard but  we are here  when you  need a chat or a rant. Take care . Keep posting . X

    Moi

  • Hi  

    I am sorry you are having such a rough time at the moment. I suppose it’s encouraging that your oncologist thinks the discharge situation is normal, but it certainly doesn’t sound pleasant or easy to manage. I hope you reach some improvement. 

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission