Hello all,
I’m waiting to hear when I can start radiotherapy for my whole brain and have lung, bone and brain mets with secondary breast cancer. My family are visiting today from the south of England, I live in Newcastle so I’m looking forward to seeing them but basically I’ve woken up feeling terrified and scared. I know there are no certainties for anyone about the future but I can’t believe this is my life now. Things are probably made worse by the fact I’m waiting for treatment and don’t really know what to expect from radiotherapy but I just want to shout that I’m so scared. I found this forum helpful last time I had a wobble so am reaching out again. How do people stay strong? I find sudoku puzzles, housework and my dog Archie help but am finding it impossible to focus on much more. I can’t even concentrate on reading anymore and I love a good book, bloody cancer!!
Thanks Eddie,
im hoping I’ll calm down a bit when I have something in the diary for radiotherapy. As for the storm, Archie is a funny one as he was quite excited being outside in it earlier but indoors he’s been looking really worried and pensive with the sound of the wind outside. I’ve been trying to keep him calm, makes a change as lately he’s had to look after me .Hope you and Poppy are keeping warm too. Xx
Same here, it’s just a bit breezy in Newcastle. I hope your family in Scotland get their power back soon. Xx
It’s so difficult isn’t it. I can’t imagine my old life again now, though what I wouldn’t give to get it back! I think what hasn’t helped was having been told recently my treatment was working well and that I was likely to have a considerable period of stability. The next thing I know I’m in hospital with brain seizures! The thought of anything in the brain feels terrifying although I have heard of people for whom treatment has worked well and I hope I can be one of them. Doom scrolling is a good way of putting it, so easy to do especially with mets in different places but I’m trying to tell myself that although my diagnosis isn’t good, none of us really know how well we’re respond to treatment. Fingers crossed for all of us here xx
Hi Clare, I hope you hear something soon, hopefully your GP can push things along, tell your GP how the waiting is affecting you, it can sometimes speed things up.
Awww Archie 's posing again, he must know how handsome he is, he's a little more worried indoors as he can't run away from the storm in the house, and he's worried about you, his pack mate.
Poppy and I, have had a lazy day, but we're going to friends later for dinner, we've been lucky with the weather, windy but mild and sunny, hopefully the worst is over in Newcastle.
Eddie xx
Hope you’ve both had a nice dinner. It’s calmed down in Newcastle now and his nibbs is feeling more settled. He didn’t like the sounds coming from the chimney earlier, hence his ears on high alert! Clare xx
Evening Clare, I'm glad the storm has passed, and Archie is feeling more relaxed, it's not nice seeing them stressed,we sometimes forget how much more sensitive our furry friends senses are, how are you doing today Clare, have you had a restful day indoors, We had a very short walk to friends who'd made minestrone soup which was lovely, I even got some to take home.
Eddie xx
Hi Clare,
Gosh the wind has been powerful here in Scotland! My GP surgery closed so appt rescheduled for Tuesday. I had a 4 hour nap instead, oops...! My cat was luckily completely unphased. I suspect she's got a little bit of hearing loss. Can still hear the rustle of food packaging though!
Having the plan makes me feel better, and this is still in the treatable stage.
xx
Hi Lex, looks like we got off lightly in Yorkshire, and I hope the storm caused you no damage on its way through.
I read in one of your posts you go to Maggies, as do I, my 'local," ones are Leeds and Nottingham, but I've alot been to Cambridge, Aberdeen and Inverness, wonderful people in amazing buildings.
Eddie xx
Hi eddiel,
Yes, my local Maggies is Aberdeen, I actually live less than a mile from it. The building looks amazing when it's dark and lit up inside. And the folk there are so friendly and just amazing, staff and service users. It's helping me a lot. I took this photo about a week ago.
Morning Lex, thank you for the photo, I couldn't agree more, wonderful people and places, I wish I lived just a mile away, both my 'locals,' are at least a hour away, and parking is horrendous, still worth it, I go for the relaxation course, which helped me with my sleep after 18 months on 2 hours a night, I'm so pleased they are helping you as well.
Eddie xx
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