Stage 4 kidney cancer with metastasis in lungs and now pelvis

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hello! It’s two forty in the morning and I’ve got up to have a herbal tea, weep and pain relief. I was diagnosed with kidney cancer the year Covid hit and had an operation to remove my left kidney a couple of weeks before lockdown. Three years later I was diagnosed with lung metastasis and in Summer this year it has also been found in my pelvis. I had a radiotherapy treatment in September for pain relief but, unfortunately, it hasn’t helped. I am now on Oxycodone, Longtec, and liquid form for breakthrough pain.

My cancer treatment is Cabozantinib, this had actually been shrinking my lung metastasis but the last scan found it in my left and right hips. It is proving difficult to get on top of the pain and I am feeling very miserable and in constant pain in varying degrees. My consultant has prescribed Naproxen which I am to take alongside the Oxycodone and paracetamol as soon as it is delivered.

Can anyone offer a ray of hope to me regarding the effectiveness of this pain medication cocktail or suggest Alternative methods of pain relief? Just hearing from someone in a similar situation would be heartwarming, I’m feeling very alone with this at the moment even though I have a lovely husband, family and dear friend to share with.

Please, if only to say hello, I would be very grateful - thank you, Teresa x

Moi2 4 days ago

Hello Lagatha22, hope your pain killers have kicked in and you can get some rest. Your on the right site, the people on here are kind, supportive and that listening ear is very good we do laugh as well, and that does help. So saying that if you need to let off steam you can on here rant rave, I do know having a rant does help, because you don't like to say some things to loved ones. I was a diffrant cancer to you, as for mets they like uou were lungs groin and a few othere places, I did spend a lot of time on the site. Please keep posting, others will pop in and say hello and may be sombody will be on the same treatment as you. Be kind to yourself and take care. XX

MOI

Leelaloo 4 days ago

Hi Teresa. I have secondary breast cancer with bone mets. I have them in pelvis, the whole of my spine, ribs and skull. I get a lot of pain in my back and hips. I also had radiotherapy last year on my spine for the pain. It did work for a while but it has come back. What works best for me is tramadol. I did have morphine but I prefer tramadol. It does make me very nauseous, so I take cyclizine. I also found keeping active helps with the pain. I also have a lovely husband but find this site helps me tremendously as we are all in the same boat and of course no judgement here. I know what you mean, cancer can be lonely. Please know that you are not alone and we are all here for you.

Lee xxx

Stella2020UK 3 days ago

Hi Teresa

Sorry to hear you are in lots of pain. I have bowel cancer and it has recently spread to the pelvis. Right now it only causes mild discomfort. I am having 3 fractions of SABR to completely eradicate the 2 mets.

I think with palliative SABR they only give you one fraction? I know one bowel cancer patient who had the one fraction SABR for spine and it did not help. He then had private treatment aiming to eradicate the met and it did work. Of course that did not help him with other mets but improved his QOL a lot. I don’t know whether that is something can be explored with a private clinical oncologist specialised in radiation oncology of kidney cancer.

They are other things such as cryoablation for bone mets, I would not just accept the poor QOL without trying all venues first.

Mmum 2 days ago

Hello!

Sorry to read of your woes. Cancer is a right bu55er. I can't offer any advice re pain meds because my experience so far is not in the pain dept, but feeling rubbish and fatigued (fixed by immunotherapy).

I have kidney cancer, spread to the lungs, which immunotherapy drugs ipilimumab and nivolumab) has managed effectively.

But if I was in your shoes I'd be asking your onco whether a change in immunotherapy drug was appropriate or up for consideration. I hear what you say, that cabo reduced the lung mets. But it didn't stop the growth to a new area.