Hello.

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New here following a January diagnosis of advanced prostate cancer. Still getting used to the idea that this nasty little beastie has colonised me whilst I wasn't looking. On a duplet HT treatment which has got my PSA down to 0.1 so it's stopped it growing for now but the efficacy of one of the meds is limited. Timeline indeterminate. Talk of when the Enzalutamide stops working possible Chemo with Docetaxel and Cabaziitaxel and Radium 223 mentioned as is a topical use of radiotherapy on the larger metastasis on the pelvis. To complicate matters a few other scares popped up with all the scans. 

Possible primary or secondary cancer in the lung.. First biopsy went a bit tips up as I was discharged then a few days later my Urology Consultant reviewed my discharge X-ray and spotted a pneumothorax so I had to spend a couple of nights in the AMU. Took a few weeks to recover from that at home and was then told they needed to do another as that one had been "non-diagnostic". Bugger. However, next one was a doddle and if you compared timelines where I was being admitted to hospital on the first one after the second I went for a walk and grabbed a pint. Lab result came back as "no definite cancer cells" but CT recommended. I have the appointment so hoping I might soon be able to cross that off the list.

Following a CT then MRI on the inside of my noggin there's a possible distended blood vessel behind the right eye that has grown in size since an MRI back in 2012. That's a bit worrying as my Mum had a similar, unspotted, issue and the vessel burst and permanently wrecked her forward vision in that eye.. So waiting on a referral to the Ophthalmology Clinic.

Next up is the ticker. Following a GP appointment I was found to have high cholesterol to go alongside some chest pains (which might be acid reflux). So to be safe I'm not just on Omeprazole it's also off to Cariology I go. Echo Cardiogram and CTCA done but no results as yet. Seeing as the scans were a few weeks ago and the chest pains have receded with the Omeprazole it might be no news is good news as no alarm bells have been set off. Mind you I'd like confirmation as the list has been getting a bit long and I'd like to cull it. 

So that's where I am to date. I'm racking up the Departments - Radiology, Urology, Respiratory, Oncology, Cardiology and Ophthalmology on the horizon. All this has happened this year in the run up to my 70th Birthday which was on the back end of June.  Thank the heavens for ale and single malts as it's hard work being retired - from the NHS (oh the irony).

  • Hello  

    Welcome to the group! You have gathered a strong sets of hospital departments. I have in addition gynaecology, colorectal, plastic surgery, and endocrinology but not had cardio and ophthalmology. Maybe we do need a competition on this. I was also seen/ treated by 3 hospitals in Cambridge and 4 in London. Maybe we can have a hospital review like Tripadvisor for hotels. Haha 

    BW Stella x

  • I have you at a disadvantage as I worked for ten and a half years in the hospital as an overeducated underpaid roving cleaner. So I racked up just about every possible department you can think of. Now I'm back - as a patient and perusing the departments from a different perspective (just being thorough).To add to the patient list in my OP there is talk of ENT and  In the past I've also a patients eye view of the ED, Plastics, Ophthalmology (now a repeat offender) and Physiotherapy. I think I'm due a loyalty card.

  • Hi DavieDog ( and the other prostate crossovers!)

    I have found the Prostate forum really really useful, informative, supportive and caring.  Using the nudge from Millibob I decided that it would be worth joining a wider community, so glad I did!

    In my former life (now retired) I spent many years designing new hospitals so have quite a good knowledge of what goes on where - little did I realise that I would get to enjoy seeing them from a patient perspective !!

    We are a little lucky in general that our cancer is relatively slow growing - there are some really emotional stories on the forum which really bring home how widespread and varied the problems are that face the many lovely folk on here.

    Best wishes to all

    KrisPy