New arrival to the Long Middle and to this forum

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Hello Everyone,

Here I am, where none of us really wanted to find ourselves, right?

After 6 months of pretty effective chemo/immunotherapy, and a week before my planned mastectomy, we learned that my TNBC had spread to my bones. At first, we felt it was curtains for me but, after an emotional roller coaster of 3 months, we have realised that - especially if you respond well to immunotherapy - you can have a pretty good quality of life, laugh, eat, travel a bit, all the time making plans, although you have more awareness of death than most people do.

I feel humbled reading what some of you have been going through.

One day it will be my turn but NOT TODAY.

  • Hi 

    Welcome to the group! I am so happy that immunotherapy is working well for you. I certainly know patients that had decades with stage 4 breast cancer. I found live one day at a time and do things that align with your value really helps. 

    Feel free to join us at the daily chat section. A new thread will start on the 1st of the month. 

    Stella x

  • Thanks,  Stella - I will!

  • Hi  

    I also have metastatic TNBC, in my case it had spread to my liver. In some ways a similar story in that I was treated in early 22 for what was thought to be early stage TNBC with surgery first, then chemo, and discovered liver metastasis before I had finished chemo. I then went onto immunotherapy (pembrolizumab) and more chemo. As you can see from my profile and blog, I have reached a point of stability so can state with confidence that it can happen, and I hope it happens for you. Welcome to this group. There’s also a secondary breast cancer group where you would be very welcome. 

  • Thanks,  Coddfish!

    Started reading your blog. Love the spreadsheets and your sense of humour!