Hello
I am in shock. I had lobular breast cancer in 2017, and a small ductal in the summer of this year. Both times, nodes were negative. I believed I was cancer free. I am 68 (just, haha).
Fast forward to last Tuesday, breast care nurse rings. Result of dexa scan that I had had done the week before because I am on letrozole showed some anomalies. Wednesday, urgent CT scan. They don't know but I can access the results of my scans online. Which of course I did.
DEXA report says "strongly suggestive of metastatic disease, needs CT scan". Which I have had, but CT result not open to me.
Absolutely terrified and even more scared and angry when I know what is happening, the breast nurse knows I know what is happening (my medical background) and yet I have to wait until next Tuesday for an appointment.
I am scared stiff, I have had a headache for a whole week because of this, I feel sick, am virtually planning my funeral and I feel so lonely. I lost my little brother very suddenly to a heart attack in February. I am still not reconciled to that yet, let alone going straight to stage 4 overnight.
Hi Ihatecancer
my goodness what a scary time you are having! I’m so sorry that you have found this out, it must be awful having to wait until Tuesday, but please try not to panic (easier said than done I know!) but you really don’t know what this is until you talk to them, it may not be as bad as you are imagining.
I went from cancer free to stage 4 overnight, that was 11 years ago. Stage 4 does mean you are incurable but you can still live on treatment like many of us here x
