Hello. I am 50 and was diagnosed in Dec 2020 with Stage 4 terminal Her 2 Breast cancer with liver, lung and brain mestasteses. Radiotherapy, chemo and Steroids kept me going. Was put on Phesgo every 3 weeks and for the last 4 years have been living a bit in denial (apart from hospital appointments and Scans every 12 weeks) as reasonably healthy and well. I did lose my hair and my driving license (I hated loosing my car - that was the worst part!).
Still able to work full time in a job I loved, two kids, a wig and social circle. I was in denial
Roll to Jan this year and I got a shock. I was in severe back pain misdiagnosed as sciatica. I knew they were wrong and pushed for a second opinion. It was then confirmed that my cancer has spread to my spine. After 2 radiotherapy sessions and now monthly chemo. I need walking aids, I can walk short distances before needing to sit down.
Its hard, I have to look at changing my life (I live in a 3 storey town house) in so many ways, wheel chair, electric scooter, panic alarm (bungalow?) Having to face a change a bit overwhelmed and not managing to stay positive all the time. But Im trying.
Thanks for reading xxx
Hi Rosemalt, yes it's hard when the life you had as normal has to change again. You can't be positive all the time as you know, we are only human. I went in the kitchen and screamed just to let the fear and anger out. Have a chat with Macmilan, or Maggies, or cancer nurse to get a bit of support on the down days. Be kind to yourself. xx
Moi
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