Ovarian cancer stage 4

Hi Mich56, and a very warm welcome to our little forum, though I'm so sorry you find yourself here, there are  many of us on the treatable but not curable pathway, some for a very long time, and all making the most of whatever time  we have left. You will find many wonderful people on here, happy to help and support each other and now you through everything this awful disease throws at us, but  most importantly understand what it's like to live with our prognosis and make a good life for ourselves with support from each other. I have prostate cancer, everywhere, but my kids mum has just been through ovarian cancer herself" germcell tumours of the ovaries," RT followed by debulking surgery and 6 cycles of 3 chemo treatments, she"Lesley," too is NED, and doing very well, but is happy to continue working. I'm with you my friend, better things to do than work.

Eddie xx 

Hi Mich56 welcome to this forum although not through choice.  Like Eddie says it is a great place to vent, chat and just look for support from other incurables.  I find this very beneficial for me.  I hope you do too.  So come on and join the daily chat.  

Lee 2 x

Thank you for your kind words just feeling lost and not sure what todo now treatment has finished 

Hi Eddie how does your wife cope with the tiredness and working thank you for taking time to reply x

Morning Mich, your welcome my friend, Lesley and I are not a couple anymore, but are still very close, and she's doing pretty well, her work isn't physically demanding and she loves it, so it was always her intention, if possible, to return, though just part time for now, as for her energy levels and tiredness, it's taking time but things are improving steadily, it's well over 3 months since her treatment finished and she's started a light exercise class and swimming which are both boosting her recovery, but  we knew it would take time and just seeing those small improvements is such a boost, not just physically but emotionally as well.

Eddie xx 

How do you join please 

Hi Mich, just click on, Living with incurable cancer, scroll down and you will see, "Lovely morning chit chat August 2025", you can either read through a few posts, see one you'd like to reply to, or start your own, or look through previous threads and reply to anyone you would like to.

Eddie xx 

Hello Mich

A warm welcome from me too 

I have a similar diagnosis and cancer to you - it’s such an overwhelming trauma to deal with and I have struggled mentally although coping better now 

I manage life by focusing on a day/week at a time , it helps me massively in terms of staying positive, it has taken me a year to reach this mindset and this fab bunch of people are a great part of it 

I also visit my local Maggie’s centre for support and have done a couple of courses there - they are fab. Otherwise I just try to carry on with my life as normally as possible 

I’ve started exercising regularly again - for me this really helps my mental health too

Fatigue is hard to deal with at times  but exercise really helps me . I do always sleep well so lucky with that I guess 

It’s great that your treatment so far has been successful, that’s such a positive 

I’m still able to do most things so just try and crack on with life whilst I can and focusing on being me 

Look forward to talking more 

Lots of love 

Lucy xx

Hi lucy thank you  I am and have been positive all the way through treatment its now I worry about it coming back I feel bloated and think is that a sign would be nice to chat to someone who is on the same path 

Honestly I could have written that , I have a lot of strange pelvic and abdominal pain as well as bloating oh and weird back and chest sensations- so I guess all over really ! 

Our bodies have been through so much when you consider the extensive surgery with so much removed , chemo and maintenance treatments we cannot expect to go back to how we were 

I try to say to myself that as my scans are still 3 monthly if anything changes it hasn’t been changing for too long and there will be a new plan 

I don’t want to live paralysed by fear as it will stop me from enjoying the present so I acknowledge negative thoughts and then push them away and get on with my day - can’t say it works every time but I’m mostly positive now . Keeping busy is very important for me , if I’m not occupied I can easily spiral