Stage 4 bowel cancer

Hi sorry you have had to come here, thought you are most welcome.

Lots of people to support you when you need it, we all have Cancer all different sorts.

You have made the first step, Pease use i the  group i would not got this far with out help from others, that are  on this journey. threw .

Hi  Den, and a warm welcome from me to our caring and friendly little group. We all know what it's like to be given our prognosis, so well done in moving over, which isn't easy, but  hopefully you will find the support and understanding from the wonderful people on here, as helpful as many of us have found it, I  was sorry to read your surgery and capox weren't successful, a situation many of us can relate to, and I'm sure our experiences of moving on from such difficult news will help you in some way. One thing I'd like to say is to not take too much notice of your prognosis, most of us choose to ignore ours, as they are only a guess, based on old statistics and older treatments, there are guys on here, like my good friend Ellie, who are many years past the time they were given.

Eddie 

 Hello stranger.

I never ever asked for a prognosis did not want to know, 

Never in a million years thought i would still be here.

Hi Den

A warm welcome from me too 

I have an aggressive, incurable cancer but currently can still do most things so I take life a day/week at a time without thinking further ahead 

I cannot say I found this easy to do and some days I wake up in a negative place but am determined that cancer will not dictate how I live until I absolutely have no choice 

My local Maggie’s centre at our cancer hospital have helped me enormously - I hope you have access to professional help 

Our lovely friend Stella on here has a similar diagnosis to you (I think), she has just returned from a 3 week safari in South Africa! I’m sure she will drop in soon

Be kind to yourself and look forward to talking some more 

Lucy xx 

Hi Den

Hello from me too.

Lucy has made some excellent comments about how she is dealing with her life with cancer. Whilst everyone is different, and there is no 'right' or 'wrong' way to cope with your illness, many people have found that living each day as it comes, accepting there may be some bad days, and making the most of your good days does help.

I don't plan more than a month ahead, and I'm not too ambitious in my plans either! But I am managing to live a good life with my cancer, even though it is not as full as it used to be. This 'acceptance' takes time. It is 3 years since my diagnosis, so I am not at the 'beginning'. I do remember it being very scary, but this has settled down now.

The helpline here is really good, especially if you are feeling worried. Maggie's centres and the Macmillan centres are also very supportive places. Please don't feel you are alone! There is plenty of help out there, and here on this forum.

hugs

Kate

Hi Ellie, my friend, that's me getting stranger every day.

And I agree  Ellie, having a prognosis is not a good idea, knowing your not curable is enough, and your journey is a wonderful reason why, they are seldom correct.

So how are things for  my favourite Essex girl?, I hear you have a new family member, I'm so pleased for you, what a wonderful thing it is for us, the best medicine in the world.

Eddie xx 

Hi Den A warm welcome from me too! We all know what it is like when they drop that bombshell of Stage 4 incurable but with new drugs being developed all the time, it makes us ncurable but treatable, even if it is just to slow the cancer down, it is worth a shot.

As the others have said ignore the prognosis, Oncologists don’t have a crystal ball and no one can predict when anyone’s end will come. As well as Ellie and myself, there are many here not weeks or months over our sell by date but years past it. Where there’s life, there’s hope and that is exactly what we need, not all this doom and gloom stuff but you have to work at it. It is a rollercoaster ride but it does slow down so we can catch our breath sometimes! 

Good morning anndanv

I'm receiving FOLFOX chemo atm. The Oncologist says it's working re controlling the cancer.

It's the shock of going from 'successful surgery' to 'the cancer's spread and it can't be cured'.

Thank-you everyone for your messages. I apologise in advance for any moaning x

Hi Den64

I was also given incurable stage 4 bowel cancer diagnosis last December. It is a very hard situation and be kind to yourself. Allow yourself the time and space to accept the situation. I am on 2nd line chemo as already had the first line CAPOX a few years ago. 
There are many ups and downs with chemotherapy, let your team know any problems and they can adjust the dose to help. 
I was quite low when I first got the news but since have found peace and acceptance. I have managed trips to Mallorca, Italy, and Zambia.

Take one day at a time and try to find at least one joyful thing for yourself every day. People here have all travelled the similar paths and will help / carry you along the journey. 

Take care 

Stella x 

Hi Eddie

Lovely to hear from you. Hope Mandy and Leslie are doing well. Xx