Incurable cancer

Crikey Annette, I have just read your profile, you really have been through it and you are still here supporting and encouraging other people.  Wow what an amazing lady you are.  I admire you and hope I will have your courage and positivity.  

Lee 2 x

Hi Scottish Mac I am getting past my sell by date now and not getting the pain under the ribs which liver cancer is suppose to cause , I have two tumours the bigger  one being 180mm. I spoke to my oncologist on Friday and he was asking about any symtoms which I dont appear to have at the moment  Thank God . But I am coming off Dexamethasone steroids which are like a miracle drug so far for me as I stopped immunotherapy in April as it was making me ill and not working and really screwed me up big time , From walking miles every day to becoming a  sick couch potato. I now feel much better granted I have been feeling ill with the withdrawal effects of the steroids but I will fully stop in over a week . The Oncologist asked how I felt as we had both agreed that treatment wouldn't be worth the risk of putting me in hospital with more Chemo. He said the previous treatment has probably had enough time to get out of my system and now he wants to send me for a scan with maybe the proposal of more Chemo. He mentioned a 10% chance of it working and I said 10% chance is better than no chance so I might give it a bash if I feel healthy enough. He has given me just over a month to make sure everything is out of my system and I will hopefully feel up to having my fourth crack of the whip. So never give up , I am not defo going to be having this but the plan is back on the table , All the Best Minmax     

Hi Minmax , that is the some size of a tumour that you have and not be in pain wow, I too am taking dexamethasone to help with pain control as you say it is a wonder drug ,right now couldn't do without it, l  like you use to  walk for miles each day to sitting around is easy but it is something we all seem to go through because of fatigue just have to take the good with the bad, I hope whatever you decide about your treatment will help you, I start treatment on the 29th of July so hopefully I will not rushed back and forth to hospital for pain which has happened 5 times in 3 months, never give up you say at first l thought what is the point of carrying on we have incurable cancer it's the end but when I met people on this site something changed the positive attitude amazed me ,so like many others I will not lie down to this it's onwards and upwards do the treatment and try for a better life ,let us know what you decide on treatment and keep in touch All the best 

Joe 

Hi Scottish Mac. Good luck tomorrow  Be positive and never give up , I have had radiotherapy , Chemo twice and been hospitalised due to white cell issue , Immunotherapy and major surgery , So I can say I have done my best or given it a fair crack of the whip . I know it has a brother or sister only God knows which is bigger lol. I am having 2mg Dexamethazone every 2nd day now with the intention of stopping on the 5th. The Dexamethazone has seriously dealt with niggles etc .  Half My tongue has been swollen for months and it effects my speak , eating and drinking , Today my tongue is not so swollen and I can move it like nearly normal. All the Best Minmax       

Hi ScottishMac

Hope all goes well with your treatment tomorrow!

xxx Kate

Hi Joe,  good luck with your treatment today.  Please let us know how you get on.

Big hugs.

Lee 2 x

Hi Kate, it was just blood tests and a consultation today, it all went well and I start treatment on Thursday. 

Joe xx

Hi Lee, it was just blood test and consultation today which went well so I start treatment on Thursday. 

Joe xx

Right guys and girls l have my first treatment on Thursday what sort of things can I expect, feeling unwell,???

Is it Folfox chemo - from your post 8 days ago?

I can't comment on chemo, but I will say starting treatment is not without trepidation of a new experience that could continue for 2 years.  The fear of the unknown.  I never new whether I'd be starting a new longer term acquaintance with my bathroom.  Fatigue may be likely, diarroah, and the visit from the pharmacy was notable for me.  All these drugs and How would I remember it all, along with who to ring on what occassion, in the event it went awry.  

You start off doing everything as you should.  I'm thinking daily temps checks here.  For me that lasted a few weeks then I stopped.  It seemed pointless!

After the 2nd - 3rd cycle you start to get in the swing of it and the regularity sends the uncertainty away, a positive!