Hello everyone

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Hi, 

I’ve been following this group since March but for some reason my join request had not been approved so I couldn’t post anything. That got sorted out today.

I can see this is a hugely supportive group and hope I can add to that.

whilst you can read my bio for detail a quick summary would be: 

63,

Jan 2022 stage 4 stomach cancer, prognosis less than a year.

Jan 2022 1st op (aborted, complications), prognosis reaffirmed and initially told no chemo and no op palliative only. 

Following further review and quick recovery from op Chemo agreed. 

Jun 2022 2nd Op - successful but post op historology not great

Adjuvant Chemo completed Oct 22

Dec 22 to Jan 25 in great health, not a single days illness, got a new job (mistake should have retired then) 

Jan 25 very ill, tests confirmed cancer metastasised to soft tissue in abdomen and affecting liver.  Prognosis less than a year, palliative care only. Onc offered Chemo but assessed would add 2 to 3 months at best which I declined.  Immediately stopped working.

So far just getting liver related symptoms which are not frequent and I would describe as mild. Managing to get insurance and do some travelling and still golfing 2 to 3 times a week albeit usually followed by fatigue. 

I have already made my peace with the situation, hardest part is not knowing what comes next or when so as most of you know it’s about living for the day, I’ve always been about moving forward so I make plans on the basis I will still be OK when that day arrives so July and August already looking pretty full. 

I am fortunate to have a wonderful supportive family and circle of friends so feel truly blessed. 

I have been looking into alternative medicines so would welcome any discussion from others who have also looked at that. I have been having Reiki through Sue Ryder and Sound baths privately both of which I find very beneficial. I take mushroom supplements and I think they have alleviated the symptoms I have been having. I am currently looking into the medicinal qualities of Beetroot. 

Well done to anyone who has persevered and read the whole post, I do tend to say/write a lot once I get started. 

I’m looking forward to contributing when I can from my experience and outlook.  I have read many of the posts and my heart goes out to those who are having a tougher time than me, thank you for creating those posts as they help me keep my current situation in perspective and to prepare myself for what will ultimately come along.
Regards

Les

  • Hi Les, Maybe you and me are the only two awake at this time but I’d like to say a warm welcome to you and I’m sure others will reply as they wake!

    I have cirrhosis of the liver caused by cancer drugs. Can I ask what.liver related symptoms you have been getting and what are Sound Baths and how have they helped? I have had Reiki as I am fortunate to have a friend who is a Reiki Master and although I felt good afterward it didn’t last very long. Reflexology on the other hand was terrific but the person doing it has now moved house so is no longer at the local hospice.

    I laughed when you said you were playing a lot of golf but feeling fatigued! I think most people do that and as long as you think it was worth it, then why not! Take it a day at a time and deal with whatever crops up is the way I handle things but like you, I plan things ahead too. Nice to meet you.

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hi Les

    Welcome to this group, which no-one wants to join! I hope you do find it supportive and friendly.

    I, too have 'made peace with my situation'. I am not having any treatment, and as far as I know, my cancer is stable. I feel very fortunate that my cancer doesn't appear to have any symptoms, unlike others on the forum. I am trying to make the best of things....in my case, not golf! But gardening...and lately, volunteering as a 'befriender'. 

    I don't plan ahead much anymore! Only by a month or two. Life tends to be 'one day at a time'. 

    I have recently had sound baths, in a group. An interesting experience! I didn't do it for healing, was just curious about it. I'll let you explain it to Annette!

    xxx Kate

  • Hi Annette,

    Thank you for responding, my liver symptoms are mainly caused by the cancer in my abdomen restricting my Billiary duct so I struggle to break down fats etc and extract the nutrients. Symptoms are mainly related inflammation. When I fell in Jan I was getting itchy skin (seem to have irradiated that) also I was getting regular episodes of night sweats but they also seem to have abated not had that for 3 to 4 weeks now (I think water intake is the key on that one) the worsed symptom is hot skin accompanied by violent or mild shaking also with high temp and Lehigh BP. I think their is a trigger for t tthose as they occur every few weeks so it’s something I am doing, probably a particular ffood. 

    A sound bath is where you go to a group or someone comes to your house with gongs and symbols and things, it is very relaxing and pleasant, some people (like me) believe that the vibrations have healing qualities. Where we are a group session only costs £10 whilst a home session is £50, I have had a couple now and highly recommend it. 

    I will look into reflexology as I think I can get a couple of sessions from the Sue Ryder hospice I am under. 

    look forward to chatting again soon Annette

    Les

  • Hi Les, welcome to the most sympathetic, non judgemental group in the universe Smile I see from your post that you have already sussed us out well! 

    I have never looked into alternative therapies or treatments, maybe I will some day but I don't feel I need to just yet. 

    You've got the right idea, as do I, live in the moment. None of us know what the next day or hour will bring to us and it's probably just as well. 

    Looking forward to getting to know you Les.

    Take care 

    Tvman x

    Love life and family.
  • Hello Les 

    You sound like you have reached a good place and spending time doing what you enjoy - great !

    Funnily enough I’ve just been to my first Sound Bath , I have discovered that Mindfulness really helps me and a friend encouraged me to try the Sound Bath, really enjoyed it 

    When I was first diagnosed I couldn’t plan ahead more than a week at a time but now I do - I just think if I’m not well enough when the time comes so be it but if I am I don’t want to miss out !!! 

    Today is all ANYONE has is my mantra now :) 

    Hugs 

    Lucy xx 

  • Hi Lucy,

    Looks like we have a similar philosophy, thanks for responding.

    Im sure we will chat more. 

    Les

  • Hi Tvman,

    Thanks for responding. Looking forward to chatting some more and getting to know you.

    Les

  • Hi Kate,

    Thanks for responding. I’m looking forward to getting to know you and the other group members.

    Les

  • Hi Les

    Welcome to the group. I totally agree with your approach. Enjoy each day as it comes and make plan for the future too. 

    2-3 time a week on Golf course sounds pretty good to me. I took a few golf lessons but have to stop after the big operation last year. It is a nice way to spend time outdoors with friends. Are you watching the open on Skysports? 

    I am lucky enough to have a reflexology session when I go for my chemotherapy. I really enjoy them.

    Take care

    Stella 

  • Hi Les, So let me get this right! A sound Bath is a bath with sounds! So if you have to get nto a bath, then that rules me out as I can’t get in or out of a Bath. I must say, I’ve heard of a lot of different Therapies but I haven’t come across that one before. I was a Tai Chi Chuan Instructor for many years and ran quite a few classes. They included Qiging Breathing to Movement, Mindfulness etc As I said I have a friend who is a Reiki Master so I know a lot about that too. I don’t suppose they do “Shower Sounds!” LOL! Just kidding!

    The thing that surprised me about Reflexology was they are usually very sensitive but it was fine and very relaxing! Let me know what you think, if you do try it!

    Chatting again would be great. You will usually find me on The Living With Incurable Cancer Group Or most recently “The Awake and Up All Night” Thread! TTFN

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!