Helo

Sorry  you have not had a rely.

This can occur for different people, though next blood test bloods could be back to normal, and treatment can be restarted.

Hi Ellie,

Thanks I wasn’t sure if you if it was a common occurrence get bloods checked tomorrow so fingers crossed 

Yes it happens, if people have been on antibiotics as well, its happens as well.

This journey throws anything and everything away.

My very first chemo gave me a heart attack, I pleaded  to have my next one.

The oncologist said not just now, you have to have six weeks rest. It resorted and I did 9  more chemo's no effects what so ever.

Its a learning curb thats for sure.

Hi

It is quite common to have low white blood cell count. it is a bit of trial and error with chemotherapy etc. They will adjust dose or delay treatment until it is safe and tolerable to you. I had several treatment delays, dose reduction etc. But now seems to got the right spot that is after 7 cycles. 

Try to go with the flow and take it easy, enjoy moments when it is OK.

Hi Struthers75, welcome to the group,  you'll find a lot of very nice, caring, empathetic people here. I've actually been away from the group for just over 2 years due to my wife's cancer diagnosis. She had radiotherapy and then chemo for 14 months so she went through so much pain and despair for a long time. My time was more important to devote to her care. I couldn't not reply to you when I saw your post as I have also been diagnosed with MDS which is quite rare. 

My diagnosis was in March 2015 so I have had a long journey to get to this point. My original problem was a low red blood cell count and that was only discovered through treatment for haemachromatosis which is also a rare disease. You'll find out more if you read my profile. I'm currently having treatment twice a week, every week because around a year ago my white cells/neutrophils also began to lose numbers. In short, my bone marrow is failing because of the MDS. I'm looking forward to seeing how your journey goes and having many chats with you.

Now, to all my old friends, I haven't forgotten about you and I'll be around for a while yet so it's going to be good to hear from you. 

Tvman 

Hi Struthers75

A warm welcome to this special group of caring people as you will soon find out. It is like being on a roller coaster, one day up the next day down but it is how you handle it that makes the difference. Keep in touch and let us know how you are doing!

Hi TVman, it is so good to see you post again, I hope this means Mrs T is a lot better! We have missed you, especially your gardening tips  We have been here a long time now and I’m so pleased to hear you say, you are going nowhere, neither am I!!

Hi tvman how wonderful to hear from you missed you so much so many people have missed you posting hope Mrs T is also well please pass on my best wishes to her xx

Hi Tvman,thanks for your reply I read your profile and found it very interesting. I’m 61 living in East Lothian I had a heart attack 15 year ago and another 2 years ago last year I thought I was having another as the pain in my chest and arms were the same but after numerous visits to the haematology I was diagnosed with Mds and a rare mutation as I’m at the start of my journey everything seems up in the air I’m currently off work at the moment my consultant said I would see him in June and get another bone marrow biopsy to see how things are going but did say if I felt better with the Azacididine I would get them as long as I could tolerate them 

Hi Flippen (Popgate). Good to see your name too, how are you doing?