Just want to say hello

The key thing you have said is that everything is stable. I think we all struggle at times with worries about what comes next, and find it hard to enjoy what we currently have. The thing that helped me the most when I became metastatic was a mindfulness course. I had almost dismissed it as ‘woo’ but decided to try it. It gave me techniques for staying in the present. Very helpful when my mind was spinning in the middle of the night. 

Please also try to forget what you have been told about prognosis. It’s not a use by date to hang over you. You will know yourself if and when things start to deteriorate. 

Hi Net!

I'm relatively new here, only 6 weeks into treatment for metastatic breast cancer - like you it's spread to my bones. I have no advice, and am very much relying on the others here to help me out! Which they've done in spades. It's a wonderfully supportive place, and I'm hoping you find what you need here. 

Lex - xx

Hi Net, you are welcome my friend,  being active, keeping busy and the mind occupied, and having something to look forward is so important, and yes I to have to give myself a kick up the backside at times, my motivation isn't what it was, and I have lost interest in a few things, but my time is too precious to not make the most of it, plus I've never been one for doing nothing, 

Eddie xx 

Hi Net,

I was first diagnosed with breast cancer in 2020, had chemo and radio and that was that until 2022 when it spread to some chest lymph nodes. Had ribociclib and the tumours were shrinking , then stable, until that stopped working and in early 2024 my right leg was really playing up, I assumed it was muscular, but turned out it had spread to bones, and later in year liver and brain. I’ve had 2 phrophylatic surgery’s to right femur and right tibia and had to have some time in a wheelchair as the cortex had been eaten so was huge risk of fracture. I’ve had quite a lot of radio this year too , including whole brain, and was put on everolimus tablets. They didn’t really work for me at all. 
I’ve just started EC last week, and it’s been prettty hard on me, but each day I feel better than the last.  I always ask my onc after each new update what my prog is and he always says years. I don’t know why I ask, it’s more to prepare the hub and kids. I’m 50, and both my kids are out of their teens now.

i have a great support system, and thoroughly recommend  therapy if you just need someone you can tell things you just don’t want to tell your family or friends. Was a massive game changer for me. I used Helen Rollason, they also do reflexology, massage and well being. 

I meditate for 10 mins every night, have started doing diamond art , crosswords, and colouring, and have now ordered a rock painting kit. These things keep my mind distracted and I get little accomplishments each day. 

when I wake up , I first say a thank you for a new day and then set myself goals throughout it. Don’t have to be big, just achievable. I know it’s easy to say keep positive, but if you manifest it then it can really help.

Sorry, just realised how long my message is!. Talking is good, and this site has helped me no end, even though I rarely post or reply. It’s knowing it’s there and there are others going through similar situations who could give sage advice.

wishing you a good day

Mollysmum

Hi Bobbyswife, I know your not new to the community, but a very warm welcome to the forum, can i just say what a cracking post, to Net, you wrote, and though our cancers are different, I see/share much of what you said, my family, art, reading, relaxation,  friends and therapy, are so important to me too, I am sorry to read about your cancer and the journey you are on, and wish you well, best wishes for your WBR, I hope it works as well as possible for you, take care.

Eddie xx 

Hi Net!

I was also diagnosed with lung cancer , no op as it had spread to lymph nodes and later brain. Had brain op , radiation etc, but this all has been diagnosed in 2015!!!! I am still here living life. Was given 10-12 months. So try to stay positive. Soon your spring will come and i hope it will make things a bit brighter for you. Talking about it, even here, helps. We all been there. 

Hi, we must look out for one another as there are not many “Annette’s” around!! Remember Where there’s Life, there’s Hope! I love quotes…..can you tell!