Shocked newbie

Hi Sweet21Pea, Welcome to the Group that no one 'wants' to be in but in my opinion it is the best Group here. Everyone cares about supporting everyone else, no matter what is happening with their own life! You have joined the Rollercoaster that is incurable cancer!

I am wondering if you have asked if there are any Drug Trials etc you could apply for. That's what I did when I was told Stage 4 incurable and given 5-7 months. They are developing drugs for different cancers all the time, so never give up hope!

I read your profile but it doesn't mention family, friends etc or even whether you are male or female. I do hope you have the support of friends and family. I am sure others will be around in time to welcome you, so you will get support here also!

Hi Sweet21Pea I am really sorry to hear this news . I can only agree with anndanv about never giving up hope.  I have had treatment a few times and major surgery having a neck dissection after a freak accident on a straight road  , I have inoperable tumours in my neck , two tumours in my liver one being 8.5 cm two more in one lung and another one in my other lung. I am having a scan on the 30th and will find out where I stand and will probably have more treatment. In Febuary they said to me we usually just send people home like you but because I was so fit they offered me treatment . The treatment shrunk some things. This is the fourth time they saved my  life after a heart attack , being told I had heart failure and a heart to weak to survive surgery at one stage. So my point is never give up hope regardless of what they say. I spoke to a customer today who had major surgery chemo radio and thought that was the end of his life at 65 , He is now a healthy 81 year old man . So stay positive please All the Best Minmax 

Hi Sweet21pea

I too have a rare form of incurable sarcoma, although not at stage 4, still scary nonetheless. You will receive lots of good advice from people on here. I don't know what I would have done without the help and support of the people in this group. None of us want to meet this way, but everyone is here for you xx

Thank you Annette

I only have my Mum & Dad and at the moment they don't, know the full prognosis I have a brother but we're not that close and no-one that I consider to be a close friends.I hadn't thought of drug trials as the Dr applied that it wouldn't respond to treatment but I will definitely ask thanks.

Hi Sweet21Pea, and a warm welcome from me, though so sorry to hear off your diagnosis,  an awful thing to be told,  and  be expected to live with,  and an experience we all share on this forum, as is a way to move on from that initial shock and make something of the time you have. I'm not saying it's easy and life will be normal, how could it be 

Like you I had virtually no symptoms, saw GP, a few weeks later, a terminal prognosis, prostate cancer with 17 mets along with many other serious conditions, 3 more last week, but life's ok, can't have surgery or chemotherapy, no more radiotherapy and hormone therapy isn't  working vary well and immunotherapy doesn't work for my cancer type,.

but like the good people on here, we find a way to move on from our diagnosis and make a life for ourselves, sure there are down days, this is normal, but there are more good days. There are many on here who are living many years beyond what their doctors told them, and the support we give each other helps, it's good to know there are others who know and understand what you are going through and who want to help you,, please ask us anything you want,  if you want to rant,  scream, or a shoulder to cry on,  we are here for you,  we also  just chat about life in general and have a laugh 

my best wishes with your staging and treatment plan, take care 

Eddi 

Hi again, Didn't I tell you there would be people along to support you and

I’m sure there will be more tomorrow! I am glad you are going to ask about Trials etc, When do : Be it  next see your Oncologist or Specialist Nirse? Keep in touch!  

Hi DDChops, It is good to see you post again!

Hi Sweet21Pea Exactly how do you process news like this . These are things we cannot run away from unfortunately. I asked my oncologist and cancer nurse if I could see someone and am now seeing a clinical psychlogist which is going to help I hope. I am a 62 year old man and not the type of person to just burst into tears or can't speak but this is what happens briefly when I am dealing with  cancer . I was chatting to a customer yesterday telling him all about my cancer trip and he was saying his was nothing compared to mine and then he mentioned My Wife or EX  , Well we were never married but have two lovely kids but she left after over 30 years together and I just got emotional all of a sudden and couldn't talk literally chocked . He apologised for putting his foot in it but now have a pal for life lol. I know this isn't the magic bullet but acceptant of the situation makes the whole process so much easier to digest I find . I am still struggling but it's just emotions I suppose and I am getting there slowly . I hope this helps in some way All the Best Minmax 

Morning Sweet21Pea, You are always allowed to get a second opinion from another consultant,  and if you check, the Royal Marsden and Cancer Research UK websites, they may give you a little understanding regarding trials.

If you search www.maggies.org to see if you have one locally, they are a lovely place to talk  to  professionals, fellow patients and do support groups too, ones that have been helpful to me. best wishes.

Eddie 

Hi Sweet21Pea

I chat sometimes with a person on another forum, who was also diagnosed with a rare cancer, for which there is no specific cancer drug. However, the oncologist decided to try an immunotherapy drug, and it is working! Even though it wasn't developed for this cancer, it is having an effect. I guess I'm saying 'don't give up hope'. New drugs are being developed all the time, so you could be in a much better place in a few months.

I agree with Annette (AnnDanv) that it might be worth asking for a second opinion.

It is worth a try!

sending hugs

Kate