Lonliness

Hello eddiel

Thank you for your welcome to the Forum and for your suggestions. My hospice offers very little in the way of activities and I do not have a Maggie Centre anywhere near me.  Joining this Forum has already made me feel less alone though.

Best wishes.  Grandyma

Hi Grandyma, I'm sorry to hear that about your hospice, but the Maggies help  is online or over the phone, you can be 100 miles away it doesn't matter. I noticed the girls made some suggestions too, I've been on the forum for a year and like many it's been so helpful and friendly, never started a new post so your ahead of me after one day, my bedtime, Is been nice meeting you and hopefully we'll get to know a little about each other, sleep well 

Eddie xx 

Hi Grandyma, No you didn’t go on a bit at all! This is exactly the right place to unload, so never be sorry! I have a son & a daughter both with their own family. My son overcompensates and thinks I should rest most of the day but is very supportive too. My daughter has her head in the sand. If she doesn’t acknowledge it, it’s not happening. I have two sisters, one like my son the other like my daughter! I do think a lot of people don’t know how to react but that’s their problem, not ours! I hope you have a good sleep tonight! Talk soon!

anndanv You are not on your own their. No communication whatsoever from my brother and my sister asking me to come to her daughter's birthday party , which happened to be in another country on a Thursdays in a local pub at 6 O clock. Both my kids have full time jobs and would have to take time off work not to mention that I was not feeling well which she wasn't hearing . I said to her you are not putting me under any pressure are you and hung up.  She got the message and has always been a bossy and demanding at the last minute type of person. Not anymore Thank you very much. This thread is turning into an Agony Aunt page lol . All the Best Minmax . Hope your fast asleep Grandyma

Hi Minmax, People just don’t get it! Under normal circumstances would you have gone to the party or given it a miss? I do think until you are in our position others can’t imagine what it’s like! I hope you went to bed early and you have not long woken up! I just haven’t got to sleep yet which is normal for me! I do hope Grandyma is asleep as well as everyone else as it is far too early to be awake!

I actually had quite a good night’s sleep last night - 6 hours but I am not having a good day today.  Just no energy to do anything.  So frustrating!  Just have to take each day as it comes.  Living with terminal cancer is no fun.  Hope everyone is having a better day than me.

Best wishes xx

Hi anndav I dont think she would have bothered asking me normally as not in regular contact with either my brother or sister , But  selfish asking me to get on a plane for a party imho especially when not well. I was up at 3 or 4 with headache till 6 , Ok now thank God All the Best Minmax 

Grandyma You can do whatever you want to do when you want. I have been diagnosed with heart failure and I use to get up in the morning go for a walk and sleep the rest of the day on and off . Just do what you can is enough , Small steps better than none X

Ĥi Grandyma, lovely to see you posting, you did have a good sleep,  I call days I feel exhausted  my down days, on them days just listen to my body and rest , I always say listen to your body and be kind to yourself.  A good film on the telly or a book between naps and snacks . You've had a load of suggestions for help and company and posting on here will only help and lighten your load. Hang in there your doing well. Your among friends here. XX

Moi

Hi Grandyma, That’s good you had a good sleep but sorry you don’t feel good today. The trouble with Incurable (not terminal) cancer is you don’t know from one day to the next how you are going to feel! I did far too much yday and only had about 2 hours sleep last night. Normally I can just lie in the next day but we had to go to a hospital appointment. We went to the supermarket afterwards, so now I am having a lie down until it’s dinner time. As Moi says just listen to your body and rest when you can! Be good to yourself! Talk soon!