Hello

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I joined the community last year - wrote loads then couldn’t post it! I’m giving it another go. 
Diagnosed with gastric cancer which spread to the pancreas last May, My prognosis was initially 6-9 months  

I had 6 cycles of oxaliplatin and immunotherapy. Half way through my CT scan showed about a half a centimetre shrinkage but after finishing the treatment and starting on immunotherapy , the subsequent CT scan showed growth. The immunotherapy was stopped and I started on paclitaxol. To cut a long story short, after several reactions, it had to be put on hold. . This was at the beginning of December, I restarted treatment last week, this time with Nab-Paclitaxol. So far, I have had no new side effects. 

What worries me now is that, after almost 2 months before restarting treatment, the cancer has grown even more. I have been struggling to eat, even more than before, since the New Year.  I also seem to to be sleeping a lot, ie not waking up until 9 or 10:00 am  More often than not, I do sleep through the night, occasionally getting up to go to the bathroom but getting back to sleep fairly quickly  

I would appreciate replies to my post and now I shall be using this forum more often  

  • Welcome though sorry you have had to come here, at some point.

    I have a different cancer, and not had any of the treatments you have had,

    I know where you are coming from, when my treatments where stopped, because of a heart attack, i asked my oncologist and her reply, we know how long we can leave you for, and you must have at least, six weeks to recover., which i did.

    Then i  restarted treatment, and everything went to plan. .Our minds are a terrible thing, i did think like you, because on no treatment the cancer was ging hay wire, bur once i was back on treament everything calmed down.

    Hope others come along, that can advise you as well.

    Please use the groups, you will get a lot of support, from everyone, a lovely group of people.

  • Hi Chrissy, I'm so sorry to hear you had problems posting! It happened to me a while ago where I couldn't even sign in. Anyway you are here now and that's what matters. I don't recall chatting with you last time you were here, so a very warm welcome!

    I think Ellie has said it all. I too have a different cancer and mine doesn't respond to either Radiotherapy or Chemo so I didn't have either option. I managed to get on a Trial and during that Trial, I had to stop treatment quite a few times because of the side effects and it goes through your mind that if you are not taking treatment constantly then how will it work. That's what your oncologist and their Team are there for, they will have a plan for you.

    Please try not to waste energy by worrying as in the long run it won't make a difference and could make you ill. I'm sure others who have had your experience will be replying when they can. In the meantime, I hope you won't have any problems on the site although people do have some problems negotiating it but persevere, it's worth it!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hello Chrissy and another warm welcome from me, I used to just browse the forums never really knowing if or which one to join, and ended up on 12, the ones relevant to me, and they have helped me enormously. Like you my treatment has had little effect and any future treatment is unlikely. We all worry about perceived delays but often they are necessary as cancer treatments can be quite brutal at times and our weakened bodies need  to recover..As Annette says the team behind your treatment will be reviewing your treatment every week to provide the best care they can. Regarding worrying, i think most of us do but have found a way to manage it as it is not helpful but as for sleeping in, if that's what your body needs then do it. please take care.

    Eddie

  • Hi  

    I'm sorry to read of your diagnosis and the problems with treatment. A very warm welcome to the group. As you'll have already seen by the previous replies, everyone in the group is helpful, friendly and very supportive.

    If you would like to read anyone's profile, just click on their username. It is a good idea to write a profile yourself as it helps with others replies to you and it saves you repeating yourself. Just click on your own username, then profile and save when you've written it.

    If you are worrying about your current symptoms, it may be helpful to ring your specialist nurse and explain. She may be able to give you advice or refer you to a dietician perhaps. Alternatively, you could ring the Macmillan helpline and speak to a nurse, this is the link to contact https://www.macmillan.org.uk/about-us/contact-us

    Best wishes for your treatment.

    A x

    What is a Community Champion?

    I am a Macmillan volunteer. 

    Macmillan Support Helpline

    0808 808 00 00 

    7 days a week between 8am -8pm

  • Thank you for your reply. I got over that hurdle with the kind words of support from others on here xx

  • Thank you for your kind words. x

  • Thank you for your encouraging words. x

  • Hi Chris's, as everyone has said we know what your going through , even though we have different  cancers and different treatments, the emotional effects are the same. All I'll say is be kind to yourself. If hungry eat  what ever can, if tired sleep, if upset cry if angry scream.  We all have good and bad days, bad days I curl up and watch films and nap and cry, then day try to cheer up. So be kind to yourself.  Keep posting and chatting. XX

    Moi