Taking xmas decs down.

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Hi, I'm new here. Given my prognosis "months not years" 24th November and I'm having problems believing it.

Intrahepatic bile duct cancer, with cirrhosis of the liver caused by my condition of Wilson's disease.

No transplant or surgery but I can have chemo to help slow down cancer spread but will only give me extra months.

Today is 12th night and reluctantly I've taken down xmas decorations and carefully wrapped up the precious items made by my 2 girls 30/40 years ago and those made by my 2 grandsons..... Everything is packed away ready to go back into the spare room. Will I ever unpack them and set them all out again???? If my oncologist is correct then the answer is no. S***, that is hard, eldest daughter was trying to help me but I was snapping -all I could think of was that this is possibly my last xmas. My husband has spend the time upstairs or in the other room when I really wanted him to help me. He is finding it difficult, I've always been the strong practical part of our marriage of 46 years, and worry about him so much.

If you've got this far, thank you for reading.

Kate

Moi2 over 2 years ago in reply to tvman

Hi Tvman, yes we will toast each other next new year. I luv hearing about people being cured but it is depressing when we know we won't be cured, I'm inoperable, but I'm so great full for my treatment that has given me extra time to live my life with my family and long will it continue. I think its a case of we have been tipped off it is on horizon, but a bus could get us with no warning. Here is hope to all us incurable. XX

MOI

Ulls over 2 years ago

Hi Kate, sorry for the late response, welcome to our club, none of us wants to be members but no choice, unfortunately cancer is rife in our family so we don't have problems talking about it.

Prognosis is just a guess could be right or wrong, my prognosis is this month and I'm not going anywhere, condition is stable.

I can understand your husband's reaction it's the fear of losing you, but talking is necessary regardless how painful, corner him in a room stand in the door and tell him what you feel and how much you need him, ring Macmillan and get him to talk to them as well.

Tvman is right let's all raise a toast to 2024, thinking of you, All the best Ulls

Nan7 over 2 years ago in reply to Moi2

Helen