Hello I'm new here.
I was diagnosed with T4 lung cancer about 20 months ago. Initially given about 3 months by one oncologist and referred to my present oncologist for palliative care.
The new oncologist would not give a prognosis but immediately put me on Tagrisso/Osmertinib. This was very successful as the drug inhibited cancer growth for the past 18 months.
I was told the effect of the drug would not be permanent and that has now proved to be true. My latest scan show new growth. I have been offered chemo, immunotherapy and a choice of other drugs. All of which carry the typical lists of side effects, some of which are not very pleasant.
I find myself with a dilemma. Either carry on with the weakening inhibitor (minor side effects) but enabling me to have a good quality (albeit much shorter life) or start the aggressive treatments which will certainly extend my lifespan but with, at best, a reduced or poor quality of life.
As I'm 76 years old I am veering towards giving the suggested chemo/immuno a wide berth and going for a better (shorter) life. My family are ok with this.
Any views?
Regards,
Ian
Thanks Mmum,
I was of the view that Chemo and Immuno infusions would prolong life but at the expense of lifestyle e.g. hair loss, nausea, tiredness, diarrhoea and continuous unwellness etc.
I have being going to gym 5 days a week my late teens but have had to stop strenuous exercise since diagnosis. But I still work part-time.
The thought of starting the suggested medications now, living longer, and then being "ill" until the axe falls is not for me. Hence my view that continuing with the reducing inhibitor and feeling good - until the "axe" - is preferable to living a bit longer and suffering.
But since reading the replies to my posting perhaps I am being naïve or too simplistic. And I would like to thank Ellie, Pet1968, Mmum and Chelle for sharing their experiences.
I am due for a scan in February and will hopefully be able to make a decision.
Best,
Ian
Hello Ian
Like others on here, I am on immunotherapy and it has dramatically improved my situation with very tolerable side effects. I am really glad I made that choice. Everybody responds differently to it and can get different side effects but there are a number of us for whom it has been very beneficial.
regards
Nigel
Hi Ian
I was diagnosed in August 22 with lung cancer and bo,ne mets. Had surgery to remove a crushed vertebra in my neck (due to tumour) in August, then radiotherapy on the neck. I really wasn't in a hurry to start further treatment. There were no suitable clinical trials for me (I was told this would be my best hope).
In the meantime though I had a number of new bone mets, and my oncologist suggested I get going with chemo and Immunotherapy as a means of controlling the disease and having best quality of life. So I've had 4 sessions of combined treatment. It generally hasn't been too bad, but this last week has been.
My husband has advanced prostate cancer and other health issues. We are currently applying to the Pegasos Association in Switzerland for a VAD. We've both had fabulous and full lives and we've decided that when we've had enough, we'll go there.
Take care
Vivien
Hi IHM,
I have stage 4 endometrial cancer. I can only speak from my own experience but I have had surgery, chemo and radio. The chemo wasn't pleasant but I would (and probably have to) do it again. I was on chemo every 3 weeks and had side effects for the first week after the infusion then ok the next 2 weeks. I would say it is up to you and how you feel in yourself. Best wishes for whichever you choose,
A x
Thanks Ian. I think I have mostly come to terms with it, but you never know until it becomes more a reality. I think and feel that this way I will have some control over my life. In the meantime I hope we will be able to enjoy the time we have.
You have to do what is right for you. I hope the road for you is a good one. - all things considered and that you have good quality time with those you love.
Best wishes to you.
Vivien
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