Hi there! Further progression spotted and after a period of stability it seems like a backward step. At least I still have another treatment option. Trying to look at this as a new battle rather than a defeat, especially now I'm a nanny.

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Coping with the 'cocktail' of pain relief and steroids and chemo causing sleeplessness. Desperately want my hand to be restored to play my guitar and piano as the cancer in the spine is causing pressure that has limited the use of my fingers. Looking for online mindfulness and ideas of looking my best despite potential hair loss (again) and being so tired.  How can I still be a cool nanny who laughs, plays and has fun?

  • Hi Swan, sorry to see you on hear but welcome, I have prostate cancer with Mets in bone's including spine, mine affect my legs, but the way I look at it is I'm still around can't play football with grandsons any more just do things with them I can manage, so stuff cancer and what we can't do and concentrate on what we can do enjoy our families and celebrate. All the best Ulls 

  • Hi i will call you Swan as well, it is shorter.

    Ulls is right, we have to adjust, to what we can do, i am afraid, it is not easy you can still laugh have fun though in a different manner.

    If you typed this, then that is good, my hubby used to do jigsaws on line there are a number of sites for that, as he could not use his hands as such Not sure how old grandchildren are.

     if it was me, play a board game with them, only need one hand, there are loads of things, Nanny s still Nanny though has a few problems, that's all.

    You do not say what type of cancer you have, hair loss is not the be all and end all f cancer, i never lost mine, though went very thin,

    My hubby and i used to laugh about it, he said, if it happens, could you please have a long blonde wig, always fancied that, i told him, well then he can wear it.

    Please use the site and group, loads of people here, we all support each other, and you will gain a lot from it.

    Could you do your profile so we get a bit more information of you,

    If you click on mine which is at the side f name, hey you can read mine,

  • There you are Swan. Loads of wise words from just two members. Loads of people will be reading your post and wishing you the best. Me included.

  • Lovely to meet you Ellie.  I may have more hair loss on the way. Determined not to let it affect me like the first time.Thankyou for lifting my spirit 

  • Love my new name.  Thankyou xx

  • Swan it  is really not important, embrace it as such, and turn things around, and if you do, not sure how old your grandkids are, if it was me, and they where young, i would be getting to to decorated on top, with paints and now i am laughing..

    Your still nanny and that is the most important thing, i always try and see the funny side of everything, at least you might not have to buy more shampoo that's what i used to say.

    Swan  does sound better, so ugly ducking has now turned into a swan, and is beautiful inside and out, xx

  • I  have just read your profile, your grandkids are young, so  there is so much at that age, you can do with them.

    When it is coming up to spring, do some plating with them, sit down and plants seeds, and they will watch them come to life and grow.

    You can do painting, with them , play board games, i taught one of mine how to play draughts, now we play all the time.

    They do everything on the phone, but boards games human contact, and laughter, snakes and ladders, all thing like that, a fishing game where you hook things up only need one had,

     have my thinking cap on, i will come up with more,

    Your a creative person and you will get your brain into gear and come up will something, , that is a saying my hubby always said, Brain into gear lol.

    Right coffee time for me, i am glad you  came here, and you will be surprised what a difference it will make, we all know where you are coming from, we have or may have been there as well,

  • You've made me so welcome.  Its like I've found a new family.  Thankyou

  • Swan you are never alone here, i can assure you, You started this thread, because there was a certain think you wanted to say.

    Great bunch of people on here, and there is a thread lovely morning, and we do nothing but chat about everything and anything, i just been on and said just got in and its cold, please use it, if you just want a bit of every day chat and nonsense.

    We all have family, but as much as they are there for you, they will never truly understand how you are feeling, only people that have gone threw it, which i mean by treatment and all tha, when my kids go how are you mum, my reply ok, as a mum to try and protect them.

    Though i can come here, rant, moan, cry and people can relate to it.

    I am glad you fill welcome and have gained another family, mind you  some times you will think we have all lost the plot, when we wind each other up,

  • Hi Swan Hugging

    Wow - what an uplifting thread! Heart

    I think you said it yourself - it's the start of the next treatment stage.  That is all.  You are still a nanny to the little people, aged 1 and 3.  Nothing changes that.  They sound so much fun. 

    We're always here to chat and support you. 

    Lots of love, Claire xXXx