Hi I'm new here and feeling very anxious about all this technology which I really don't understand.  I'm finding it very difficult to find my way around and hope it will get easier, so I'm just going to tell you a little about myself and see what happens.

I first had breast cancer 13 years ago, 3 years after my husband had been diagnosed with Lewy Body Dementia.  I had a year's treatment and he died 2 months after it finished.  That last year of his life was very difficult for me as he could not understand what was happening, why I looked different, and why at times it was too difficult for me to look after him as well as I would have wanted.  He was a kind, gentle, lovely man who would have been so supportive if he had been well enough.  He was able to remain at home until his death.

Nearly 5 years ago my son, aged 49, suddenly died from heart disease.  It was a total shock to me and his family.  18 months later my cancer returned.  It had now metastasized and was in my lung.  I had minimal treatment for a year but I felt nauseous most of the time and my hair thinned horribly so I stopped all treatment.  That was 3 years ago and since have felt well, other than tiredness which may be more to do with ageing. I do now also have a small lesion in my liver but that seems to have stabilised for now.  I am now 78.  I was most concerned to see my 2 granddaughters through university.  One graduated last year and the other is in her final year.  We remain very close but I want to see them getting on with life and not worrying about me.  As I appear so well, I think this has been successful.

I find it hard to show my vulnerability and the burden of both my grief and uncertainty about my health can be very heavy at times.  It is so hard to talk about with friends or family who find it scary and I am hoping to find others on this site with whom I can share some of these experiences and worries.

  • Well, you have done really well, to write all that, good for you.

    To be honest i have a different cancer to you, though your story is similar to my own so hit a cord.

    You will find a lot of support here, i would never have got this far without the site, i also lost my husband, he got dx 4 days before i finished treatment, and lost him just over eight months later, so i know where you are coming from.

    My daughter got diagnosed last year, so it has been hard,

    Every one her will help you get threw certain moments in your life, we shout, scream, rant laugh yes laugh, different threads for different topics, what ever ne you may need.

    We have a thread called lovely morning, and it is really a chit chat thread we talk about every thing and nothing, even if it is just morning and its raining, please come along if you wish.

    We do not always talk about cancer as such, only if it is needed, and we do laugh, keeps us all going.

    You are doing well and please keep posting, i have two grandaughters, that have just started universtaty,

    Ellie xx


  • Hi Rossie, Wellcome to the group you will find plenty of support in the group, we have been or are going through the same as you so there are people to chat with and share uour thoughts with xx


  • Hi Rossie, I am new on here but I think this group are lifesavers. Your story is horrific but we all understand what you feel like as we are all in the same club.

    We send hugs to each other, here's one from me. X

  • Thank you so much for replying and your understanding.  My heart goes out to you.  Your story is very moving.  I will do my best to join you on your lovely morning thread (if I can find it).  x

  • A hug is very welcome.  Thank you. x

  • Very Good, we are where your thread comes up, every one is welcome, you are finding your way round, you have done well.


  • Welcome to the group Rossie, I'm sorry you have been through so much, but you seem to have a positive attitude most of the time.

    We all have days where it seems too much but then something comes along to perk us up again.

    I hope you find comfort here; I know I do even if I don't post much, I still check in to see how people are doing.

    Wishing you well. 

    little-fi xx

  • Hi Rossie, welcome to the group, we have lots of different experiences to to share.

    It sounds as if you have lovely grand daughters to be proud of.

    Sometimes the technology is pesky, please persevere! 


  • A belated welcome Rossie. We may have different cancers but the burden is the same. You are among those who understand all your fears. You'll find lots of support here and wise words. Hugs from Rainie x

  • Hi  , omg you have had such had a tough time lately. So sorry to have to meet you here, I'd really love to have met you elsewhere. I don't know why I hadn't seen your message until now but the site can be a little tricky sometimes, it has a mind of its own! I've been here about 4 to 5 years, I have a bone marrow cancer, Myelodysplasia (MDS), and I have had treatment every week since diagnosis in March 2015 by way of an injection of Aranesp which is to encourage my bone marrow to produce more red blood cells. 

    I'm happy to hear that you have seen one granddaughter graduate and another will graduate this year. I have 2 grandchildren aged 1½ and 6. Girl and boy respectively. I was really worried that I wouldn't see my grandchildren grow up to be able to walk or sit on my knee on my wheelchair. (Nothing to do with my cancer, it started with sciatica in my left leg 3 months after the cancer diagnosis). Within 6 months I was in a wheelchair.

    You'll get a lot of support here Rossie from people who understand and know exactly what you're going through. Should you need to just chat, we can do that too. Talk to us about your latest results and listen to others talk about theirs, good or bad. You'll be welcomed with open arms, Rossie.

    Take care and stay safe

    Tvman x 

    Love life and family.