With love hugs and kisses to all of you,
It's difficult to know what to say to you other than I do understand to some degree, what you're going through.
It is difficult to stay strong, but remember, you don't have to be strong all of the time. Remember, it's the strength we have that gives us hope and it's that hope that keeps us strong.
Sometimes it will do you good to say exactly what you feel abd don't worry about how others react to it. That's their problem! You just be true to you!
I hope you are having counselling as it can help. Keep praying for new treatment, you never know.
Sending a big hug your way.
From Helen x
Hi Kay. I was diagnosed with a bone marrow cancer in March 2015 and from about June/July of that year I have had weekly or to fight my cancer. Every single week and if I didn't have the treatment I wouldn't be here today.
Never be afraid to speak your mind though.
Tvman xx m
My treatment is also every four weeks and I seem to have got in the swing of making sure I do something enjoyable running up to my treatment in case I feel a bit rubbish afterwards. I know without the treatment my life expectancy would be shorter than it already is and whilst I know I should be happy like you I sometimes find hard as you do but I think that is only human. You will find support here whatever your feelings or problems
I remember feeling like this. Thinking this cycle of drugs, and scans, is the pattern now until the End game. But then I learned that immunotherapy has it's biggest impact at the start and it might not be drugs forever. It might just be scans forever! And that illustrated the uncertainty of it all. Also, I quite like going in to get drugs and scans and to chat with my oncologist. It feels like I am doing something about it and in control LOL.
But I felt I was thinking about it all too much, all the time. So I gave myself a kick and upped my social activities, and other stuff. It's helped. It was definitely been the right thing to do for me. Now I can be out and I think "wow I haven't thought about cancer all day".