Secondary BC spread to bones and liver.

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I am 41 and been back and forth to the doctors for the past 7 months for unexplained back pain which moved around and got worst around my period. 

June 24th 2022 I ended in A&E, got admitted to hospital and spent the next week having blood tests, chest and spine      X-Rays, CT scan with a tracer, MRI scan. 

30th June my doctor came and told me I had stage 4 breast cancer which had spread to my spine causing fractures and spots on my liver. More test followed and one round of radiotherapy on my spine and a dose of Denosumab I finally got home on the 9th July.

My world had ended.

Iam lucky to have the support of my 2 teenage daughter's and loving partner and family.  

I saw my oncologist 19th July for a treatment plan.                 I Am ER+ PR+ HER2 negative with a 17mm mass in my breast. As well as my spine it's in my ribs, sternum and pelvis. 2 spots on my liver and potential peritoneal deposits. (Well and truly fucked)

I have started Zoladex to induce menopause, commence Letrozole in 2 weeks with Ribociclib and in a month after dental treatment is finish will have monthly injections of Denosumab. 

I am still in total shock and finding it all very hard to come to terms with. I thought I went in to hospital with back ache and came out with stage 4 cancer and an early death sentence. 

Am hoping over time as as my treatment progress I will find a more positive outlook but at the moment I can see no joy or happiness just pain and sorrow mourning the life I cannot lead.

Is there anyone in a similar position or on the same drugs? 

  • Hi H_R never saw this post till today it's amazing what you con do when your in the right mind set. I take things day by day. Don't fret about the little things and I talk about the big things. How are you doing ? Sending big hugs xx

    Moi

  • Hi happy_rattie,

    I have no wise words, but welcome to the group and I hope you have a good response to treatment. Cherish your family, if getting married seems the right thing to do go for it, it's great to have a focus on something happy, when the horizon seems dark.

    Best wishes 

    Sarah 

  • Hi happy -Rattle, just read your post, to see what's possible once your over they first few months, try reading the thread have a good morning, bunch oh incoragable incurables, for a scence of humour.

    All the best Ulls 

  • Hi Rameses,

    Well we had a chat and have decided to get married next year! Champagne glassTwo heartsBride with veilMan in tuxedoTwo heartsChampagne glass

    Something to look forward to.

    I have just started Letrozole so really worried about possible side effects but so happy to have started. 

    I have also had my first counselling session, early days to see say if these will help or not but am hopeful. Since my diagnosis I have been sinking into a dark hole. Seeing family over the past week has really helped (most live 3hrs + away) plus my amazing partner and girls have been here for me.

    I really appreciate the very small things even more now than ever, laying in bed watching a film on a Sunday morning with my partner, playing a game or having a girly chat with the girls. 

    Not started sorting the big things out yet but feeling a little more positive this week. x

  • We have decided to get married next year, deffently something to look forward to. x

  • That is really something to look forward to so happy for you both xxx

    Flippen
  • Oh , what tragic circumstances. I'm sorry to have met you here, I'd rather have met you elsewhere. I'm happy to know that you have a lot of support at home which is important. Also important is that you try to be positive and enjoy your life with family and friends.

    Take care and stay safe

    Tvman xx 

    Love life and family.
  • Happy Rattie,

    Oh My God. I am so pleased for you both.

    The very very best of Congratulations to both of you. 

    I really hope me nagging you has in a very small way helped you make your mind up on what is obviously the right thing to do on so many levels. 

    Clearly it was meant to be.

    I'm 10 days into my new marriage and I love it. It has completed me again. Why I've waited so long and for this crap to come along before I did this, I will never know.

    This will give all of you something to focus on apart from this other pants we are going through. You can enjoy every minute of planning it to get it to where you both want it to be.

    My only advice, wether you want it or not, in that context is, do everything you want to do and don't be driven by tradition. Make this unique to you both.

    We stripped it right back and then added in what we wanted, we kept the people to just who we wanted, no long distance relatives we haven't seen for years, no bad disco.

    We had our first dance to a soundtrack on a Bluetooth speaker from my Son's phone whilst 5 of our Grand children were sitting on the floor playing and dancing just beside up. Such precious moments. And that's what this all about now, build up those happy days for both of you.

    I'm pleased you have arranged counselling. I too spoke to the Support line today and have asked for help and an emotional support assessment. I'm sure it will help. The advisor I spoke to was so helpful and patient with me.

    I still can't believe you're getting married. Bloody well done. I am genuinely so pleased for you. Xxx.

    Take care guys,

    Rameses. 

  • Annie 

    The speed of this thing is a real issue. 

    Thanks the advice and I will deffo not be giving in easily. 

    I never thought of the breast cancer forum. 

    Take care guys,

    Rameses.