Devastating diagnosis.

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Hi...I really don't know what to do. Last week I was diagnosed with incurable cancer in my peritoneum. Last year in February I had a rare womb cancer diagnosis after years of visiting the gynaecology department and being fobbed off with menopause.

I had a radical hysterectomy and 6 monthly sessions of carboplatin.

I start the same chemotherapy treatment on Thursday to try to shrink or prevent further growth. 

I just can't stop crying and I don't have the same feeling of hopefulness that I did last time.

What do I do?

  • Hi nan7, welcome to the group nobody wants to be in. You'll find support, advice and humour on here, very nice people all in the same boat. All I'll say is you have a treatment plan which is good and new treatments are out there as well.

    Cry when ever you want to, if you get angry punch and kick a pillow, walk and eat well. The crying will be less in time. Keep posting. Take care Xx

  • So sorry to read this Nan, as Moi2 said cry when you want, get annoyed and look after you as a priority,  Try and stay hopeful, who know’s what is around the corner.  Thoughts are with you.  Michael 

  • Hi , glad to see you decide to join us here. I can empathise with the crying. I did it when I discovered I had metastatic deposits all over a year later after thinking I'd beaten this horrible disease after my hysterectomy and brachytherapy. It'd always bothered me that they'd found malignant cells in my peritoneal wash but only offered 3 x brachytherapy despite it being a high grade serous. Hindsight is a brilliant thing but I was led by the professionals. Reading it in black and white I'm uncurable was truly awful but I've now had a few months to come to terms with it. 

    We're all with you here and try to look on the brighter side of life. There's a few hilarious posts on here so we might all be in the same blooming awful situation but make the best of it. I can honestly say I didn't expect to be crying with laughter here but frequently do!

    Dry those tears my love, hugs, Barb xx


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  • Hello Nan, So sorry you have found your way to this club, but welcome to you - and know that you are among understanding friends. I had endometrial cancer and the hysterectomy. A year later it came back and I lost my spleen, part of my stomach, part of my pancreas, and almost lost my life post-surgery. However, I'm still here.

    It's a initially devastating piece of news to get - for anyone. All of us here are in the same boat and you will discover that prognosis is only a guessing game. If chemo won't shift it, there are now other options out there that may be applicable to your tumour. Please do not let the cancer define your life. Cry whenever you need to. I do my blubbing in the shower for some reason. Then put it back in the' box' and hide the box on the top of a metaphorical wardrobe. Only take it down, open the box and look at it when absolutely necessary. Then make a plan to get the best from every day. So, one day at a time and you will get through this to a point when it's no longer that all-encompassing 'thing' that is in charge. You will put it in its place - at the back of the queue.

    If you haven't already done so, I would advise getting all your necessary paperwork, arrangements, legal stuff etc. etc. ticked off. This really helped me and focussed my mind on getting practical stuff sorted. Please keep posting, let it all out on here whenever the need arises, and let us know how you are getting on.

    A big hug coming to you, Rainie x

  • So sorry to hear your news but you will find loads of support in this group when ever you need us we are here for you day or night you will always get a reply huge hugs xxx

    Flippen
  • Thank you for taking the time to reply  x

    Helen 
  • Thank you for your reply, much appreciated. 

    Helen 
  • Thank you for your words of support  x

    Helen 
  • Thank you for replying to my post. Much appreciated.  X

    Helen 
  • Hi Nan7

    So sorry you find yourself here.

    I'm fairly recently diagnosed  - 3 months ago.  It's a huge shock to find out it's incurable isn't it?   When they told me, I started crying and didn't stop for 3 days. Apparently I was even crying in my sleep!   

    The crying will wear off after a while.  Now if I feel things building up I put on my earphones, listen to he saddest music I can find and have a good old blub for an hour (I usually wait till my other half is out of the house firstSlight smile) then it's out of the way for a couple of weeks. This way works for me and you'll eventually find a way of coping  that works for you.

    The advice about getting things in order is very good advice.  I'm in the process of updating my will, applying for PIP and I'm going to put aside money for a funeral.

    Once those morbid things are out of the way, I intend getting on with the business of Living.  Lots of people outlive their prognosis. It's not an exact science.  Some people on here were initially given 6 months and are still here 3 years later. and some even longer than that. Xxxxx