New to this group

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Hi all I am new to this group,  was first diagnosed with bowel cancer September 2018 surgery right side of colon removed,  got it all no chemo. 

October 2019 returned both lungs, abdominal cavity,   groin and left shoulder !! Did watch and wait for a bit, then started immunotherapy, nivolumab every 2 weeks then it went to 4 weekly.  I'm on my 20 round out of 24. I've been stable since December 2020. 

When I asked my oncologist how long I had she said 12 to 18 months from diagnosis ! Well I've past that physically I feel OK, but just lately feeling a bit depressed.Im waiting for scan results on 1/3/22. I thinking that's why I feel down. Normally very positive, still walking and dancing about, not bad for 68 year old gal. I intend seeing my 70th birthday. Take care all  X

  • Hello Moi2. Sorry that you have found yourself here, but you will find much support, advice and often humour here to help you get through it. We all feel the 'scanxiety', as we call it, waiting for results. It can make you feel pretty low keep wondering 'what if?', but we've all been there and know what you are going through. Please keep letting us know how you are. You can POST RESULTS under that thread when you get them. When are they due?   Try not to think about the time scales of your prognosis: they are just guesswork really and you'll find many on here who have gone way past theirs often by years and years.  So welcome to our gang, even though you'd rather be somewhere else!   Rainie x

  • Thanks Rainie, Is amazing how just getting things off your chest makes you feel better. I'll post my results. There due 1/3/20 so not to long to wait. Thanks for the warm welcome x

  • Welcome to the forum, yet another person that has exceeded their sell by date lol. Scanxiety is one of the worst part of all of this, I’m currently waiting for scan results and it gets on my nerves cause your brain goes into overdrive. I agree that getting stuff off your chest on here where everyone understands really helps. 


    Richard

    be safe, be nice, be you 

  • Hi welcome to the group. I myself only joined this group recently. Thinking I was clear of Endometrial cancer for a year I was having little niggles looked into and it's popped up back all over the place. Just had 4th cycle of palliative chemo and recent scan's shown the tumours have halved and 2 more cycles to go before a rest but they will come back as my cancer's aggressive. The members here are lovely, sometimes with a dark sense of humour which I love, but very very supportive.

    I'm just coming up to 69 and am still dancing around the house. One of my favourite records still is Billy Ocean's "When the going gets tough, the tough get going" I intend having that played at my funeral as well as Travelling Wibury's "End of the Line". But I'm not thinking that way for at least 5 years after I get to the Stable Mabel club.

    Hugs, Barb xx


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    • Hi Barb thanks for replying, I'm on the bowel cancer forum as well, but feel I belong in this group as well. I'm going to Ibiza to visit family when I finish treatment in June, so really looking forward to that. I've every thing in order, who's having what and bought a plot and my urn. I'm also having a LIVING WAKE!!! when I feewishes xxl the time is right, so will save my lot the job. As for songs I haven't made my mind up yet, but will be something to make them smile. Best 
  • Ment ! Living wake when I feel the time is right Best wishes xx

  • Hi Richard, yes it's the waiting that drives us mad, I'm not normally this bad but it's been getting to me this time. I find music and dancing Dancer cheers me up so am of to the others room to blast some sounds and dance. Take care x

  • FormerMember
    FormerMember in reply to Moi2

    Hi Moi2 

    Sorry to hear about your recurrence, I know how difficult that is. 
    Wsiting for results is just awful , we all know that feeling too. Keeping busy, as you are doing, music, dancing etc is great, and a good little escapism. 
    I have just finished radiotherapy and now awaiting a new scan to see if it’s done anything. Absolutely petrifying, but what choice do we have, but to hope and wait. 
    Sending you best wishes and keeping everything crossed for your results. I find when I’m waiting fir results or getting hear to a scan date, I get myself all angry and upset. It’s perfectly normal I’m sure. 
    Take care 

    Jane xxx 

  • Hi Jane thanks for replying. Yes it's best to keep busy to stop the gremlins  creeping into our minds and turning our thoughts bad.  I tend to get snappy and best left to myself at this time, My husband is a great strength to me he seems to no when I need space or need to talk. I hope your scan and results are good, am thinking of you. Take care Moi xxx

  • FormerMember
    FormerMember in reply to Moi2

    Thank you for replying too. 
    Yes, definitely, and when they start to creep in, I try to do something useful. 
    I’m very snappy, and angry a lot of the time. My husband is very supportive too, and is currently doing jobs in the house, to give me some space. 
    Thank  you , you too 

    xxx