Just been diagnosed with terminal lung cancer and MPE.

FormerMember
FormerMember
  • 6 replies
  • 67 subscribers
  • 986 views

Hi I'm Geoff and new here.  Hello 

I'm 76yrs and widowed for two & a half years from my dear wife Anne. I saw her pass away with pancreatic cancer. We were married for 50yrs. During all this time my grief has rarely subsided and now Ive been diagnosed with terminal lung cancer along with malignant pleural effusion. I've already had three pints of fluid drained and a further drainage will take place next Thursday. It's a bitter sweet experience knowing I have maybe 4 - 12 months to live. The sweet is passing away and being with my beloved Anne again The bitter is the distress thats now affecting our two children plus all the bother I'll be giving  the Macmillan nurses who will eventually be caring for me. I'm a retired Met Police officer and I'm used to helping and protecting others along with my family. Now I'm the one needing help is hitting me hard. It's not who I am! I live on my own and the loneliness without my Anne for all this time has crippled me mentally,  especially now in my time of need and comfort. I'm gradually losing my appetite and today I've  just drank whisky and beer but hope to eat a dinner later on in the evening. My grief hit an all time low today parallel with my distress after Annes passed. . I just needed to communicate with others about my grief as I never show it to our children. I'm too occupied helping them. 

  • Hi Geoff, I am sorry that you find yourself here and all alone, this is a good place to share your feelings and to ask for help. I hope that you have managed a meal this evening.

    There are lots of resources in Macmillan if you need to talk to someone straight away. My local cancer care centre has a buddy scheme so that you can speak to someone who isn't friend or family openly if you need to. It may be worth looking into your local resources. 

    My other thought is that your children my appreciate you asking them for some help, if they can feel they are helping you it may help them. This would be on your terms though.

    Best wishes 

    Sarah 

  • Hi Geoff welcome to our group I know how mentally hard it is to deal with living on your own and having everything else to deal with you will get all the support you need in our group xx

    Flippen
  • FormerMember
    FormerMember

    Hi Geoff,

    I am so very sorry to read your message. I am thinking your Anne must have been the most special lady. I also hope that you have managed to have some food.

    I have only been on this site a few days but have been given some comfort here, mainly from feeling less alone with my feelings. I hope you too can get this,

    • Sara xxx
    •  
  • FormerMember
    FormerMember in reply to FormerMember

    Thank you everyone for your kind words.

    I did manage my dinner Sassy1966. I've also cut the drinking back as well because in the long term I now realise it hasn't helped. And I've now levelled with both my offspring aged 50yrs & 47yrs concerning my inner feelings and concerns. They've been so loving and supportive since this happened now they know the truth of the matter. I'm having my fluid build up seen into on Thursday at hospital. Breathing is a major problem with me despite an earlier drain of about 3pints. With only a questionable number of months to go I just wish we had voluntariy euthanasia in the UK like Switzerland, Belgium and some US States. Its a ridiculous waste of NHS and charity resources plus time treating hopeless cases such as mine when they could be saving those with a future. Personally I would be so happy to pass over now in a civilised and dignified way. 

    Thank you all again my friends x Geoff.

  • Hello Geoff,  I was so glad to read your follow-up post that you had now shared your innermost feelings with your children. It was just what you needed to do and an important step for you. It's hard when you've been such an independent man, but there does come a time when it's our turn to receive the care and compassion that we need. And there are some wonderful people out there who know how to give this and make a difference to you. Please don't think that you are being a burden. Allow others to give you the care and the love that you need and deserve at this time.

    Have you organised palliative care yet? I hope it's in the pipeline for you, and I know that in many areas you can get to know the Macmillan nurses, or those in the hospice if you have one in your area, in advance of their being regular visitors to you. I hope you feel more comfortable after your hospital procedure tomorrow.

    Best wishes Geoff from Rainie x

  • Hi Geoff welcome to the forum but sorry you need to be here. Good to hear you have now shared your situation with your offspring it’s one of the hardest things you have to do. Like you I wish death with dignity was an option in this country.  I hope you feel better after the next drainage and it make the breathing easier. 


    Richard

    be safe, be nice, be you