New here

Hi and "welcome"
I was diagnosed 24 Nov 2021 and my husband and I quickly came to the conclusion that we didn't have enough info to tell family until we knew what treatment would be and more info on the cancer - I was scheduled a biopsy.    Now I am starting to think about telling them once my daughter has finished exams at the end of Jan.    Plus I have done a lot of research and I can now answer their expected questions like "why didn't they spot it earler?"

The most important person here though is you and to make sure you have sufficient support.   

Keep us up to date - it's early days and there is a lot of new research and treatment options out there.  

Claire xx

Hi Claire

• Thanks for replying . Yes I think you are probably right it's difficult having a conversation with family if you dont know all the facts yourself . My oncology nurse called me on Friday to let me know they were still working on the source of the cancer and the next MDT meeting is on Friday so hopefully I will know more then
• Sally xx

We have all been in your nightmare Rosie and are here for you. Claire has possibly described how you should be looking at things.

Don't write yourself off, once you get a plan into place you can consider what needs doing and who needs telling..Good news often surfaces here, it's not all doom and gloom. Xxxx

Thanks Norberry I know what I am feeling will ease and I'm not alone in feeling like this and it definitely helps to speak to others in a similar place x

Thanks Norberry I know what I am feeling will ease and I'm not alone in feeling like this and it definitely helps to speak to others in a similar place x

Hi and welcome to the group. 

I had a slightly slower journey to diagnosis and was expecting curative surgery at first, my husband and my surgeon were both keen that I was open with my family, by which I mean my adult children, from the start, I was and I have not regretted it.

It has been difficult and for several months the news kept getting worse, but we've not had to hide anything from them and as I am currently stable they enjoy the good news too.

This seems to have worked for us, but I appreciate that others have children at different ages and stages. Telling my parents was different and hard as it had to be done over the phone, but I did tell them that my diagnosis was 'inoperable and incurable'.

I hope that you find the right path for you and your family. 

Hello Rosie, Firstly, sorry that you have to join us here, but you will find a lot of understanding and support, as well as good advice. You have done the right thing in sorting out the practical aspects - it takes us all differently, but doing all these things helps to bring peace of mind - including chucking out old clothes. However, you may find - and we hope you do - that you will soon be replacing them with new ones as things turn out differently from what you are presently imagining. There are many here who have received the same news you have, but are still keeping on keeping on years later.  Please try your very best to keep as positive as you can. We know there's no trick to this, but when it all gets a bit much come on here and bend our ears.. Rainie x

Thanks Rainie I guess it's about planning for the worst whilst hoping for the best. 

I am trying to do a few things each  day along with resting and relaxing and not stressing too much

Sal x

Welcome to our great gang of people who will support you 

Same as I have.  It’s either as a result of breast cancer or womb cancer.  Only way to see which is to have a biopsy and I won’t have that unless I need chemo at some future time.  Already had chemo for triple negative breast cancer and oncologist and I felt I may not tolerate more chemo so I decided not to have it. I’m not in pain but my stomach doesn’t feel quite right somehow.  I have no other problems at the moment.