Lurker turned contributor

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I’m 59 and diagnosed roughly 3.5 yrs ago with bile duct cancer, I had crazy surgery and 6 months of chemo, at the end medical staff ticked the cure box. Cut to July this year and scans show that I have mets to my lungs. I’m now 6 cycles out of 8 down the chemo route, bald as a bald thing and trying to get my head round prolonging life rather than cure.  

I’m a pretty pragmatic person and thought I’d mostly got my head round it all until, to add a further level of pain to an already painful situation my husband of 20 yrs was diagnosed with a brain stem tumour in Sept and died 5 weeks later in Oct.

I’ve pretty much had my fill of cancer if I’m honest and having days when it’s all too much, feeling anxious and shaky and so very tired. I think the feelings I’m experiencing maybe more to do with grief but in my head all that’s going round is how on earth do you come to terms with incurable?

Anyway hello to everyone and look forward to becoming more involved with you all.

 

  • Hi . I myself have only recently joined this particular group. I was recently given an all clear after the 4th quarterly check-up for Endometrial cancer. I'd been persisting with having tests for unexplained problems since late August as I thought something was up. A Ct scan has shown lesions on liver and spleen and masses in 3 other places so I was right, gutted doesn't convey how I felt and I've just started 6 cycles of chemotherapy.

    Being told I was incurable was pretty surreal but I can honestly say when I introduced myself here the support and definitely quirky sense of humour is a tonic. Whereas my family and friends don't seem to know how to cope very well I find myself actually grinning when I read some of the posts, yes I'll get bad days but my ambition is to reach the Stable Mable club and beyond.

    I can't begin to say how sorry I am to read of the loss of your husband so quickly, to lose someone like that must truly know you sideways.

    Looking forward to making this journey together with you and the other members of this lovely group .

    Hugs, B xx


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    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • Hi and welcome to this fantastic group of people in this group who will support you whenever you need support xxxx

    Flippen
  • FormerMember
    FormerMember

    Your situation does sound awful, certainly you have had your share of rubbish luck. People on here have experienced the good, the bad and the ugly. I'm not saying you will have a great Christmas but I will say things will become clearer and you will be able to live with all of this. As Popgate says there is masses of help on here, don't be polite, get humpy, get grumpy and eventually you will feel a bit happier. I don't only hope so I know so. Xx

  • Hello and welcome. Firstly i'm sorry for your loss. Yes being told , incurable is like getting hit in the head with a bat! But as time goes on you learn to life with it, and living i mean. Many of us are here for years ( me it's 6 ) and still living. May a few hick ups but hey , you can't have it all. So start ranting, yelling , laughing...it all makes you feel alive. Big hug, Pet

  • Welcome to the forum sorry you have a reason to be here. Your story sounds awful I really do feel for you.  Getting that incurable diagnosis took every once of air out of my I was in a daze for quite a while. This forum has helped me learn to live the time I have. I have found the people her very helpful.  


    Richard

    be safe, be nice, be you 

  • Thanks for the welcome B. Loved this bit "my ambition is to reach the Stable Mable club and beyond", we could all do with a bit of Stable Mable in life :-D

    I already get a sense of that quirky sense of humour and will definitely be sticking around.

    Having just posted what I thought was a reply to 1 person I can now see how the thread works. . . .

    Posting on here for the first time was quite daunting so thank you everyone for taking me in your group, understanding and being supportive, all these things are much needed. 

  • Hello Picnix, Just seen your post and also wanted to add my voice to the others. You've had and are having a rotten time. It must all seem hopeless but you will find lots of little lights on here helping you to illuminate your way through it all. There's even a little arty thing on here that I do so if you feel a little art therapy might help you at any point, then do message me. Meanwhile, it's time to send the big hugs. Rainie x

  • Hi welcome to the club. Sorry you have had such an horrendous time, and of course you are still in the midst of grief as well.You do get your head round the diagnosis eventually and i see you are already making your contribution to the forum. You will get to know who are the jokers, the stoics, the slightly bonkers, the serious minded and the wise ( you decide). Welcome too

    xx

  • Hi Picnix,

    You've had such a hard journey to here, I am so sorry for the loss of your husband. You are dealing with many difficult things. This is a good place to ask for help, I have really benefitted from the kind, wise and silly people here, I hope that you do too.

    Best wishes 

    Sarah 

  • Thank you,

    B xx


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett