New to the group

Thanks Tony.

I  like it, life is a bucket list!  A good point.

Bucket list is also the name of a film with Morgan Freeman and Jack Nicholson which is where I first heard the term.  In the film the Morgan character went with the rich Nicholson all over looking for fulfilment, but Morgan finally found it back at home where it had always been.

I did not have a lot of chance there Tim. Dosveydanya tovarich.

Thanks again Patricia, your advice is appreciated.

No,   Kytril requires a prescription here.  The oncologst refused it because it causes constipation.  But believe me,  that would be welcome compared to what I have now.

I cannot take dopamine antagonist anti-emetics or sedating anthistamine anti-emetics because I have restless legs syndrome (RLS) and these drugs trigger it..Believe me, RLS is worse than nausea.

This, sad to say includes more or less all the ones you've mentioned.

Neither can I safely take any antidepressant, any neuroleptic, most antacids, beta blockers, most blood pressure meds and have to avoid alcohol, sugar and caffeine.

My GP (PCP)  however has prescribed me Ondansetron, which you may know as Zofran.  Ideally I'd like medicinal cannabis, but it's not so easy to get that here.

My fatigue actually preceded my treatment by 3 months and isn't entirely due to any treatment.  They cannot explain it!

I'm not entirely defeated.  Joining the community has allowed me to have a good moan. 

Today fatigue has failed to prevent me from doing something I found rewarding and the zofran has started to help.

Thanks for your concern

Tim

Hey i did learn russian to lol...Minja savut Pet, i schiwuve Australia,

zdraste Pet.  Ya zhivu v anglia

Hello manjus, So sorry you have to be in this club, but rest assured you can come on here and there will be others who will know exactly how you feel. Have a moan and get things off your chest. I don't have a bucket list either. I've pretty much done everything I wanted to and don't really want to exhaust myself chasing around here and there to no good end. We all have differing priorities depending on how we are made and what our situation is. Try to think of what you used to enjoy before you became ill. I'm immunosuppressed so can't go to the concerts I used to enjoy (Covid not withstanding) but I get a lot of pleasure watching concerts on DVD, which to me is a lot better than just listening to the music. So you might find some calm in watching a favourite thing rather than participating.  Hope you find a peaceful place to be.  Rainie x

THanks Rainie

Nice thoughts

Hi Tim, welcome and commiserations on being here.

I didn't think I wanted a bucket list, but if I see something I'd like to do I write it down it has helped me to plan days doing nice things. I love your comment about really appreciating when you can do something nice though.

I hope that you are able to see that your wife is secure here, that must be a horrible anxiety for you.

Good luck managing your symptoms and side effects

Best wishes 

Thank you Sal

Tim

Dear Tim, You are certainly going through the mill and I wish you all the strength to emerge the other side into a peaceful and restful time. I share your view about the human species and what is happening to our once beautiful planet and all the life on it - I used to use a lot of my energies fighting against the cruelties of this world but you get to a stage when you realise you just can't do it anymore. I am a great fan of the band The Eagles and especially of their singer/songwriter Don Henley, who has also been a great campaigner for the environment. I'm having this song played at my funeral. Below is an extract and some of the words may strike a chord. It's called 'My Thanksgiving'. Give it a listen on youtube.  Rainie x                                                                                                                                         'Have you noticed that an angry man
Can only get so far
Until he reconciles the way he thinks things ought to be
With the way things are

Here in this fragmented world, I still believe
In learning how to give love, and how to receive it
And I would not be among those who abuse this privilege
Sometimes you get the best light from a burning bridge

And I don't mind saying that I still love it all
I wallowed in the springtime
Now I'm welcoming the fall
For every moment of joy
Every hour of fear
For every winding road that brought me here
For every breath, for every day of living
This is my Thanksgiving '