New to the group

Only this to say Tim, have some hormone therapy. It is always successful for quite a while in bashing up your PSA.  

Let that do its work while your renal problems can have your teams full attention. A few side effects but so has drinking beer.

Hot flushes can be sorted out by medication. You will be a bit knackered but you will have a genuine reason to slob about. You will do a bit more crying but I love a good pity fest!

The best thing is getting support on here, international members as well, some different word spelling but no funny accents to contend with!

Good luck.

Hi Norberry, thanks for your reassurance.

It's an individual thing.  After discussion with the oncologist I'm holding off on the hormone treatment.

I'm told WITH hormone treatment I could last another 10 years if I only had prostate cancer.

I'm also told that WITH treatment I can last a "small number of years" if I only had renal cancer.

I've done some sums!

Bless those who only have one cancer.  I've read of course about side effects of hormone treatment.  I can't say obviously because I've never experienced them.  However I can tell you that the treatment for renal cancer is no fun whatsoever. This stuff is literally poisonous.  If you didn't have cancer it would eventually kill you itself.

I'd say I'm barely copinng with the side effects, plus the side effects of the medicationn I have to take to counteract those side effects.

I try to avoid taking any more medications and getting yet even further side effects, so I'm passing on the hormone therapy for now.  There's a point at which enough's enough and I hope I can recognise that  point when it comes.  I'm lucky perhaps to have a good oncologist who is very frank with me.

I'm only guessing but it sounds as if you have experience of hormone therapy and you're coping.  I'm glad you are, it's positive.

You're quite right, what is good about sites such as this, (I am in other ones), is the support you can get.

That's what I need.

Thanks for your very kind answer

Tim.

Ah, peace is the thing isn't it.  Is it a drug?  Sadly not.

I'm not much good at making the most either PLUS this awful treatment prevents so much.

I used to love food and eating it, now eating is a torture.  They had to stop my treatment once because my mouth was so sore and I have developed a phobia about eating.  Everything tastes either like soap or tin foil.  I'd sayn I'm now anorexic.

When I do eat, the consequent diarrhoea makes the ither end sore too! I'm stuck between two sore places.

The fatigue stops me doing what I want to do and even takes away the want to do it.

Sleeping is now my favourite hobby!

I am working towards peace.  I'm trying to sort out things for my wife's continiing surival after I've gone which is "complicated".

The positive's are that things I used to worry about happening I now know will never happen, at least to ME. e.g. like the imprending end of the human race because of global warming.  I believe it's too late to stop and too many people simply don't care.

My neighours are actively contributing to global warning without any thought apparently.  They have converted their potentially fruitful and oxygen producing garden into a plastic and concrete desert.  Even the grass is plastic!

The oither positive is that when I do enjoy something, I not only enjoy it, I appreciate enjoying it, because it's not normal any more.

I hope you too find some peace and pass without distress.

Tim

You've made things a lot clearer Tim. You have got plenty to be getting on with. The hormone treatment has kept me going, it does eventually fail but it only has to fight the one cancer with me so was the answer.

I can only hope for you to have some success, it's a bugger.

Thanks Stuart, you are a gem!

I'm pleased to hear that you're making the best of things and managing to enjoy your remaining time.

At the moment, fatigue particularly is so bad I can barely do anything.  I get exhausted.

I'm hoping when the treatment no longer works I might have a period when I can do more.

I think I'm reconciled to dying, I'm not quite reconciled yet to the process of getting there.

Thanks for your kind reply.

Tim

Of course you're right, hormone therapy is a good answer for you and I'm oleased you're managing with it.

Tim

Sometimes I see a post and immediately think I know best. How could this be? I have spent 45 yrs with my wife being told I don't know best but I still rebel.

And to your wife  ,,,,, preeviet, kuckgella. Was a long time when I tried to learn Russian and I wasn't full of rose wine.

I, like Norberry, sometimes speak without knowing enough background. But for real, they won't give you Kytril? The one you are on is over the counter here, people use it when they take boat rides - maybe not the strongest. But, do you have nausea still? Or is it something else left over from prior treatment? If still, there are lots of other options. Of course it depends on your situation, maybe the meds you are on limit your options for anti-nausea drugs. But have they mentioned zofran? Phenergan I think is another one people are on. Compazine, prochlorperazine, Emend, scopolamine, etc. Below I'll try to put a link to a big long list (not sure if I can paste links). Some are sedating, which might seem counterproductive when you have so much fatigue. But it's always a balance - like how much of your fatigue is because of grueling nausea and not being able to eat.

I can hear that you are feeling defeated, and hope you are able to find some relief here. I had some pretty harsh treatments so I know some of how you're feeling, and I'm sorry you have to go through it!

www.drugs.com/.../nausea-vomiting.html

PatriciaV

Hi Tim and welcome. 

I think life is one big bucket list from birth. If we were planning to do, we would have done it already if it was so important, dont you think. I know some people want to do things and thats nice. Im content with a walk by the sea or in the forest. Im currently touring Istanbul, virtuality, via YouTube vlogger. Ive had some time to reflect on my life and this has helped bring a sense of fulfilment. Today, I learnt that several old school chums had died of coronavirus. Theres no guarantee for anyone and noone gets out alive. I think this mindset brings a greater value for today...take care

Sorry to correct you, since you don't know my wife it's zdravstvute (formal hello) not privyet.  The latter Привет is familiar, friends and family only!

Kak dela is correct (как дела),, how do you do?

хорошо́ Спасибо  (harasho spaciba)  Good, thank you.

I'm just showing off!

Пока Пока (paka paka/bye bye)

Tиm

not previette, лривет is familiar friends and family