Saying hello

  • 7 replies
  • 71 subscribers
  • 1236 views

hello all, still in shock at being here. Tried immunotherapy and chemotherapy but kidneys wouldnt play ball so no treatment now. Feeling ‘is that it’ to trreatment stopping and a bit abandoned with scan in august. I want to live my life but find myself sitting around waiting to die. Need a kick up the a*** and sure those that have gone before me on this journey will know what to do. Thank you

  • FormerMember
    FormerMember

    You don't need a kick up the arse,  its not your fault what has happened to you. I don't know how long since you have been diagnosed but what you are feeling is so common. Fill in some of your biography then wise people will have some practical and sensible suggestions to help you. Waiting for a scan is draining, we call it scanxiety,  we all suffer from it.

    Hoping for the best for you. Xxx

  • Welcome to the forum, sorry you need to be here. I have kidney cancer which has spread to my bones. Not had chemo as oncologist said it’s not much use against kidney cancer. Currently on pazopanib which seems to be keeping me stable. I know that feeling of waiting to die rather than living. Managed to snap out of it in the end by booking stuff in the future months and deciding if I get to go great and if not never mind.  It seems to be working as I have booked tickets for stuff in October and I am even looking at holidays for next year


    Richard

    be safe, be nice, be you 

  • Thanks for the welcome Norberty. Will do

  • I think you are maybe too harsh on yourself. This is a very difficult situation, I am not sure how we are supposed to deal with such news. I do a lot of sitting around too, but then I manage to push myself to do something and usually feel better. I do hope you have a strong network around you, we are here too. Take care, try to focus on things that calm you and bring you joy xx

    Flowerlady x
  • A kick up the **** isn't needed, sorry you are here but, as everyone else says, glad to meet you.

    Sitting around waiting to die is dull, make plans, start easy with today and tomorrow.

    I have become braver over time, but if there is something you want to do, make a plan to do it, and don't worry if you have to reschedule, life is  unpredictable.

    Best wishes 

    Sarah 

  • As many already have said, no kick required, you’ve been through a lot, take things easy, be kind to yourself, start making small plans and build up, it took me a long while to start making plans whilst I have relative health.

  • Hi Divine. Glad you managed to find your way here, welcome to this very warm and supportive group. 

    I can completely understand the feeling of abandonment. Whilst you are being treated under the hospital, you have that safety blanket, which has now been pulled from you.  

    I agree with what others have said already, just plan something small and work up from there. It does make you feel good when you have achieved what you have planned, no matter how small that is.  We all have bad days, and I myself have been having more frequent bad days of late, some of this is down to my anxiety with restrictions ending. This pandemic has not made it easy for anyone who has been shielding to make plans, but now shielding has ended I am very cautiously starting to get back out there.  Start each day a fresh, if you couldn’t do it today, don’t feel bad about that, just try again tomorrow. 

    Take care x 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge