New to the group and inspired by the togetherness of the group. Lovely to see there's support.

Hi Steve I hope you are getting on OK with the Nivolumab on its own. I read you were stocking up on chicken madras and winced I’m afraid as immunotherapy often has diarrhoea as a side effect and people are usually asked to keep diets plain and gradually introduce stuff so I’m hoping you are fine. I have actually not had diarrhoea as a side effect but as a cautious person who doesn’t much like spicy food the advice was easy to follow. 

I have had my surgery now and am in the recovering stage building up to normal walking slowly even though the groin node surgery was near the surface it’s in a really awkward place for walking. I’ve had a lot of sickness which might be related to cancer still growing in nodes near my stomach or anxiety because of that and not currently being on active treatment. 

My onc has got targeted therapy meds in the pipe line but I’m suffering from a supply problem which I hope they sort soon. I have a scan on Saturday so I’m assuming the results will dictate how soon the supply problem gets sorted and if a plan b gets implemented. I haven’t been on site recently as it’s all been a bit much keeping an even keel. 

Hi KT, So pleased to see you posting but sorry to hear what you've been going through. I certainly know what you mean about an awkward place! I had a full left side groin dissection a long time ago now and still have problems! I do hope your oncologist can access the Target Meds you need ASAP and your scan results are encouraging!

Hi Steve, Just wondered how you were doing now? As KT has said, I'd be very careful with the curry and spicy food in general, it's not worth upsetting your stomach for! Or maybe for you, it is worth it!!

What a difference 13days makes, targeted drugs were couriered to me two days after my post and I’m doing well on them no side effects to report, and I’m slowly coming off sickness tablets.

Steve82 I hope Nivolumab is working for you and that you have enjoyed the madras. Since my being sick couple of weeks I’ve been fancying beef crisps and also marmite on toast. I hadn’t had any crisps since 2016 but as I’d lost a few kg I gave myself a treat. Marmite I hadn’t fancied since it was a pregnancy craving 31/32 years ago which made me laugh, I’ve been reassured I’m not expecting grandkids! 

Hi KT, I am so pleased things have fallen into place for you! You must have been so relieved when the meds arrived! That's great you have no side effects, long may it last!

Hi Annette, 

I've been doing ok of late. I have a scan the end of January and I've had no issues with the spicy food. I've been having 3 currys a week and it's helped me put a good 2 stone back on. 

Hope you've managed to have a good Xmas.

Hi KT,

I will find out and of the month after my scan. It has been causing me a lot of joint pain but I can put up with that if it's working!

The Madras has been amazing, life's too short to give up my favourite food and I've had no diarrhoea from eating spicy food so far. I did when I was on the double medication but now I'm just on Nivolumab I've been ok.

Hope you've enjoyed your Xmas and are doing well. 

Steve

Hello Steve, It's so good to hear from you and that you are making good progress and have recovered your weight. You seem to be getting on alright with Nivolumab and that's good to know. I'd find it hard to stop curries too. Hope you're managing OK.  Keep us posted won't you?  Rainie x

Hi Steve, Great you're putting weight on. I've never been able to eat curry, in fact my stomach even objects if I put pepper on my food! I'm so pleased you can eat and enjoy your madras curries and it is helping you at the same time! Keep it up!

Yes thanks, although we had a quiet Christmas we really enjoyed it. Our grandchildren are a great age for this time of year. They are 9,7 and 6.

Tell me, did you have a curry for your Christmas dinner?? Lol!!

Hi Steve82/ Steve, I’m glad you are feeling ok on Nivolumab and enjoying your favourite food. I hope the wait for your scan and results goes quickly. I’m doing ok to, my scan will be mid February I have no date yet but that’s when they’ve requested it for. By the time the results are ready my trial Tcells should be ready to and we will know wether to freeze them for later, use them, or the possibility I ignore that they haven’t grown as successfully as they want. 

You haven’t mentioned how your Christmas and new year was, I hope you had a good one. Ours was quiet just me and hubby with a few FaceTimes booked in to our girls, lots of Christmas tv but also nearby country walks to work off any excess food guilt. 

Hi Steve82, I was figuring that you’ve had your scan by now and you’re in the waiting period for results which can be tough. I Hope things are going ok with you.