Sh*t out of luck

FormerMember
FormerMember
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So my triple negative breast cancer just took a great big shove from ‘curable’ into ‘fu*ked’. Diagnosed in October 2020 they were all very optimistic about it being cured. Then the results from my last scans came on Thursday to be told that without further treatment I might last a year. 

They have advised me to continue treatment and I’m seeing the oncologist on Thursday. I feel like there is very little hope right now and I’m still in shock from the result. I’m 37 and a single mum to a 6 and 4yo. I’m trying to find my way through this. Any words of support/hope/encouragement would be welcome right now. I’m worried I’ll get to the oncologist and they will say there is nothing they can do. Mainly because every time I go into the clinic they tell me something so much worse than what I though they would be saying. I seem to have this unstoppable cancer that is drug resistant and the doctors/specialists/consultants don’t have a clue what to do. Everything they have done so far has lead me here. Don’t think that I’ve slept since Thursday.  

  • FormerMember
    FormerMember

    Hi Number7, welcome to the group.

    I don't have any great wisdom to offer, but what you will hear from the wiser heads here is:

    • The shock of the new prognosis will pass vey soon, and,,
    • Don't believe a word when they tell you how long you have left, loads of us are way, way past our sell by dates. 

    Try to keep your chin up, and stay active in this group, it's a fantastic source of support and information. We're all circling the drain here and we have a good laugh about it most of the time.

    Much love,

    Stuart x 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Stuart, 

    Thanks for your reply. Yes this is only day four of living with this diagnosis so still very much early days. We are still grieving for the life we all thought we’d have together. My parents, siblings and I. There are also still a lot of unknowns treatment wise before we see the oncologist on Thursday. They are dangling this ‘promising’ treatment in front of me but I have to wait for test results to see if I’m eligible for it. I’m trying not to get my hopes up for it as nothing has ‘gone to plan’ so far so why on Earth would my luck change now? 

    i know I’m not in a very positive place right now. I’m hoping once the shock has passed and we get a bit more back to normal that I can be a more positive person over the summer so we can make some memories for the kids. 

    x

  • FormerMember
    FormerMember

    Sorry to hear your story. I can certainly relate to what you say about grieving for the life you had planned. While they're still offering treatment, there's hope and you may defy the gloomy prognosis. Reading Sophie Shabbage's book 'The Cancer Whisperer' might help, if you haven't read it already. I was diagnosed as incurable in March and the shock is wearing off now. Good luck x

  • Welcome to the forum we are all incurable in here and most of us have been through the shock of being told so.  When I was told in July 2019 I was convinced I wouldn’t need to write a Christmas list two years later they are telling me to think in years not months, I’ve only just got used to thinking in months not days ffs.    It’s one hell of a shock and you will be up down numb and everything in between. I have found this forum a comfort as people here get it, I hope it can be a help to you


    Richard

    be safe, be nice, be you 

  • Hi there..welcome here. Oh yes i think we all understand what you are going trough right now, being told ...incurable is horror.But see as long as they can give you treatment there is always hope. It must be very hard with so young children...and i am sending you a big hug!!

  • Hi Number 7.  I hope you can have further treatment.  Many live with incurable cancer and a long time after their life expectancy predictions.  I had TNBC.  Mine was treated but then I was diagnosed with womb cancer mets that led me here.  

  • Number7 womb cancer and TNBC were unrelated primary cancers and not connected in any way.  I say this in case you worry about having another cancer.  I was just unlucky.

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks. I’ve downloaded the book onto my kindle. It would be nice to have some mental peace! 

  • FormerMember
    FormerMember in reply to Remoh

    I’m glad your defying the odds! Keep it up! 

  • FormerMember
    FormerMember in reply to Pet1968

    Thanks. The kids really are the hardest part. I’m putting things in place for them which is helping with the shock and horror of it all