New to Living with incurable cancer forum.

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Hi Everyone,

Just wanted to say hello.

Please feel free to read my profile.

I am 62 and was diagnosed with treatable not curable Locally Advanced Prostate Cancer 1st September 2020.

T3b N1 M0

 Gleason 4+5=9

Prostap Monthly- Hormone Injections

(Minimum of 2 years)

8th April 2021 cycle 5 of 6

Chemotherapy sessions.

A few weeks rest and then onto Radiotherapy.

Everyone keeps telling me I'm doing brilliant.

But after 8 months last week I just burst into tears.

Don't know where it came from, but it did.

Back in the saddle now, fighting the fight.

Visiting Maggie's helps a great deal.

Please stay safe and thanks for having me and my journey here.

Spud

"You don't know how Strong you are,

Until being Strong is your only choice"

Bob Marley

  • Hi . Docetaxel was tough.  I found week two the worst,  I also found comfort in knowing it was temporary,   Good luck for your last cycle. Take it easy and rest up

  • YoungMan 

    Thank you, rest is what I feel I need now.

    My blood sugars are high now due to the Prostap Injection.

    This is accompanied by numb feet and burning feet,cracked and flaking.

    This is also part due to the Chemotherapy also and I was given cream on one of my consultations.

    I am waiting for the GP to call me back hopefully today.

    Still smiling and still fighting.

    Take care

    Spud 

    "You don't know how Strong you are,

    Until being Strong is your only choice"

    Bob Marley

  • Morning Spuduknow

    Not sure where to post things any more but wanted to let you know I did the Maggies 5km yesterday along Bournemouth beach - the weather was glorious and at 8.30 the beach was still empty. So glad we started early as it got very hot as the day went on. Managed to do the whole 5km with some of my family walking with me - was so busy chatting and admiring the view didn't realise how far we had walked until my watched buzzed!!  It did catch up with me later and doing very little today but I raised about £500 plus some gift aid - not a lot I know but to crib one supermarket chain (others are available) "every little helps"..  On the plus side I slept all night not done that for a while.

    I felt a bit conspicuous in my Maggies t shirt which is very bright orange and somehow I managed to order a 3XL (not sure how I did that) so more of a dress really!!  Would post pictures but have no idea how to do that...

    Hope you are doing ok.  The sun is shining here again this morning so putting it in my diary as another good day. x

    Carpe Diem
    Deb1E
  • FormerMember
    FormerMember in reply to Deb1E

    Well done Deb1E, that is a lot of money and a lot of effort. It made me tired just reading your post! Pictures as soon as you can work out the procedure, I have no idea how either! Xx

  • Deb1E 

    Wow that's amazing, so glad you did it.

    I bet you feel so proud.

    Sorry I've not been in touch lately.

    I am waiting for my oncologist appointment at the end of the Month, pre Radiotherapy.

    I need to know what will happen and if there are any questions that I should be asking.

    I'm at Maggie's this week and tomorrow is the Monthly online Prostate Cancer Group for Manchester.

    Please take care and stay safe.

    Spud 

    "You don't know how Strong you are,

    until being Strong is your only choice"

    Bob Marley 

    • Well done  if you use the following icon you can add photos,  re radiotherapy just take itceasy, drink plenty. Radiotherapy seems so minir. You just lie on the table, there are noises, the machine move but no sensation, i had three to my breast (breast bud treatment) felt drained and thirsty, 
  • FormerMember
    FormerMember in reply to Deb1E

    Congratulations  that certainly is a good day! So glad you had a good sleep afterwards it’ll probably take a few days to fully recover. Good luck with the pictures, you should be very proud of yourself xx

  • Thank you so much re -

    Radiotherapy advice.

    I finished my Chemo 29th April and have got stronger by the week,with a little bit of knackered thrown in.

    I will keep everyone posted.

    Take care 

    Spud 

    ""You don't know how Strong you are,

    until being Strong is your only choice"

    Bob Marley

  • Hi Spud, It is good you have an appointment with your oncologist before your RT starts. RT is not suitable for my cancer so I have not had any experience of it but there are lots of people here who have gone through it and I hope they respond to your post! The one thing I would advise, is for you to write down any questions you have, as you think of them and take it with you to your appointment. That way you won't forget anything and by the end of the appointment you should feel reassured! Please keep in touch and let us know how you are doing!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • anndanv 

    Thank you for your  kind words.

    I have started a list of bullet points to take to the oncologist.

    I still gets spells of fatigue, but not as much now my Chemotherapy is over.

    I am still on monthly Prostap Hormone injections and they still give me episodes of tiredness along with the odd hot flush. (On this for two years)

    The Prostap has increased my blood sugars however (full blood test to be done again in 3 months)

    The Chemotherapy has left me with Peripheal Neuropathy especially in one of my feet more than the other.

    My feet feel like  ice and are numb.

    (Worse as the night draws in)

    GP gave me some pain relief for during the night and says this may not go away.

    I'll make a post after I've been to the oncologist.

    Please take care and stay safe.

    Spud 

    "You don't know how Strong you are,

    until being Strong is your only choice,"

    Bob Marley