New to Living with incurable cancer forum.

  • 43 replies
  • 69 subscribers
  • 8301 views

Hi Everyone,

Just wanted to say hello.

Please feel free to read my profile.

I am 62 and was diagnosed with treatable not curable Locally Advanced Prostate Cancer 1st September 2020.

T3b N1 M0

 Gleason 4+5=9

Prostap Monthly- Hormone Injections

(Minimum of 2 years)

8th April 2021 cycle 5 of 6

Chemotherapy sessions.

A few weeks rest and then onto Radiotherapy.

Everyone keeps telling me I'm doing brilliant.

But after 8 months last week I just burst into tears.

Don't know where it came from, but it did.

Back in the saddle now, fighting the fight.

Visiting Maggie's helps a great deal.

Please stay safe and thanks for having me and my journey here.

Spud

"You don't know how Strong you are,

Until being Strong is your only choice"

Bob Marley

  • Control Freak,

    Please take care and thanks for your response.

    I try to keep busy daily.

    When my wife and kids leave for work, I try to clock on and get the hardest jobs out of the way first.

    Been told go ease back a bit lately as I never stop ( but I'm forced to some days)

    Love to walk my two "English Springer Spaniels"

    Sometimes together.

    I leave the off lead stuff to my family.just lately.

    But they are such and escapism

    I'm sure the dogs know, one in particular never leaves my side.

    Take care and stay safe

    Spud 

    "You never know how Strong you are,

    Until being Strong is your only choice"

    Bob Marley

  • Norberry,

    Thank you so much.

    My oncologist says she wishes to be be speaking to me in the terms of years.

    So no holding back now.

    Fighting the fight.

    We are going to strip our back garden back to s blank canvas and create a whole new lovely place.

    Your words are kind.

    Take care and stay safe

    Spud 

    "You don't know how Strong you are,

    Until being Strong is your only choice"

    Bob Marley

  • Galilee,

    Thanks for your time.

    I think you have this bang on.

    The lockdown has been hard, especially as I got diognisis almost immediately after a "total knee replacement"

    Seem to have been locked up for ages.

    But you are correct, second wind will arrive, and if it doesn't I'll have to make it happen.

    Please take care Stuart 

    "You don't know how Strong you are,

    Until being Strong is your only choice"

    Bob Marley

  • Welcome to the group sorry you have need to be here.  I know the bursting into tears think quite well it’s hit me a couple or three times. Sometimes triggered by an event sometimes it just hits.  Got in the shower one morning, cried for the entire duration of tithe shower, got out and felt much better. People always say positive things as they are usually to afraid to ask questions. Some will get used to it in time others won’t. 

    have to say it’s a friendly bunch on here between us all we have probably experienced most things cancer related. Sometimes It’s nice to be around people that get it 


    Richard

    be safe, be nice, be you 

  • Hi . Your Gleason was higher than mine, although my Gleason was lower, it’s spread.  Emotions get to you occasionally, mine have come out crying, anger, self pity ... not always in the most positive way.  It’s okay to let go

  • FormerMember
    FormerMember

    Hi  lovely to meet you although....

    it sounds like you’ve got this, tears & meltdowns are a part of it. As long as they don’t devastate you I think it’s completely normal & healthy. It doesn’t always have to be a fight either, that would be exhausting. My dog is a great distraction for me, a real  little character. She’s embraced the role of ‘therapy dog’ helped along by tasty treats & makes us laugh every day. Can’t wait for warmer weather & more time outside. xx

  • Remoh,

    Thank you so much.

    It's nice to know your thoughts and kind words.

    I have taken alot from your final sentence.

    It is so simple and yet so true.

    I've always tried to be me, no one else.

    Please take care and stay safe.

    Spud

    "You don't know how Strong you are,

    Until being Strong is your only choice"

    Bob Marley

  • Tinalay 

    Thank you so much.

    One of my dogs is always by side literally.

    To the extent that the others in the house comment.

    He follows me everywhere.

    He looks at me in a knowing and understanding way.

    Even makes me feel calmer.

    Warmer weather, yes that will do me.

    Stay safe 

    Spud 

    "You don't know how Strong you are,

    Until being Strong is your only choice"

    Bob Marley

  • Thank you YoungMan,

    I understand what you are saying.

    I have Various ways to distract me.

    And will not hold things in.

    Just need have stepping stones at the moment.

    As I said I had chemo cycle 5 last week.

    And will be glad when I've taken my seventh injection.

    I usually start to pick up a little more.

    Then with one chemotherapy to go I can rest before radiation.

    Stay safe and take care

    Spud

    "You don't know how Strong you are,

    Until being Strong is your only choice"

    Bob Marley

  • Hi and welcome to the group no one wants to join but are always pleased to be part of (if that makes any sense to you) - I know a bit late but better late than never!  For various reasons not been posting for a while.

    Love the Bob Marley reference - big fan (showing my age now) and quite often get the old vinyls out even got my youngest son into BM.  

    Would be interested to hear about Maggies - my consultant suggested it to me as they have just built a centre in Southampton.  Are they helpful?  I had visions of tea and sympathy which is not me ...

    Have a good day

    Carpe Diem
    Deb1E
1 2 3 4 5