Recurrent endometrial cancer to spleen and beyond...

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Hello,

Following a 2019 hysterectomy my scheduled CT scan showed an enlarged spleen and further PET/CT confirmed a tumour plus other hot spots, including an inoperable one in my chest.

A splenectomy was perfomed just before Xmas 2020 and, following complications, I was hospitalised for two months. The tumour and further 'hot' lymph nodes having been dealt with.

I'm now at home and trying to build up my strength. The original projected chemo didn't happen within the originally projected timeframe and my oncologist thought I'd not survive it anyway due to my weakened state. He thought I should concentrate on quality of life.

However my gyny surgeon hopes I will make myself strong enough to undergo chemo and, possibly the only other option, radiation, for the inoperable chest cancer.

Meanwhile, with the passage of time, there may well be other hot spots yet to be discovered. As it's an agressive stage 3 I wouldn't be suprised, but that's me speculating at the moment.

I've researched my prognosis which is grim. Anything from 8-15 months in the examples I've found and there aren't that many examples it seems as such a recurrence is rare. However, it would appear that it's a small club I've been joined up to.

I was wondering if there is anyone else out there who might be in the same boat?

In fact, anybody else having to think about whether it's worth having chemo, when the payoff can be so little?

Thanks for being there.

Rainieday over 4 years ago in reply to WishingWell.46

Hi WishingWell,

I'm seeing my oncologist in a couple of weeks and then I'll find out what he thinks about chemo for me. It's funny but a few weeks back when I was in a worst place than now, I was actually relieved when he told me he wouldn't give it me. I felt as if a huge burden had been lifted - it became his decision and not mine as to whether or not to have it.

Now it's likely the decision will be back in my hands, as I'm much stronger now. I feel I need more information before I can do that, but as that all seems to be ifs, buts and maybes, an informed decision may be wishful thinking. I'd like to have the best quality of life I can manage. Do I swap a possible three good months for a possible three awful months to maybe get another three in a probably not great condition. It's an impossible question to answer it seems.

I've heard that previous RT can hamper the success rates for subsequent RT later, but I don't know if this is across the board?? I opted not to have any brachytherapy after my hysterectomy as it seemed the survival rate with or without was the same, so maybe that will be taken into consideration in my case.

I really hope things work out for you and I thank you for sharing your experiences.

All good wishes